Value of Life vs Medical Costs

I'm drinking Numi's Gunpowder Green Tea with Vital Protein's Coconut Collagen Creamer and Redmond Real Salt and doing some reflecting before heading to my post-operation appointment with my gynecologist.

What is the monetary value of quality of life for a person with chronic illness who lives in a first world country with access to excellent doctors? Is it worth paying $14,000 for a medical surgery that might give a ton of pain relief, may result in fewer sick days at work, possibly improve fertility, and has potential to make a person feel human again? $14,000 could buy a year of college, a good reliable car for the long-term, a down payment on a small starter home, or a new roof for your home that will last long-term. What if I told you this surgery might only benefit the person for a couple of years at a time? Is short term quality of life (that isn't guaranteed) worth $14,000, when that money could buy long term services or possessions that also give quality of life?

Yes, my laprascopic surgery for endometriosis and my cardiology visit added up to $14,000. That's before my uninsured discount and my cost-sharing program benefits. My next step, after I wake up and am thinking clearly enough, is to make some phone calls about this bill.

In 2 years I can give an answer to this question, because I've been told people with endometriosis can need surgery as often as every 2 years. It's too soon for me to say if it's benefited me at all yet, given the fact that I'm still healing and my period hasn't yet come. The problem is, I wasn't aware that I was gambling with this much money when I agreed to the surgery. I was told that surgery was around $2,000. That turned out to be true. What I wasn't told was that I would pay $750 for each of the 3 anesthesia treatments I needed during the surgery, $7,000 just to be in the operating room, and lots of other charges for the staff that helped me in different parts of the hospital. If I dug deeper I'm sure I'll find the charges for the multiple IVs I needed, the time I spent in the recovery room, etc. Had I known the cost before surgery, would I have opted to do it? Probably, yes. It's a gamble, a bigger one than I anticipated, but I believe one worth taking.

The older I get, the less confident I am. Endometriosis has definitely been holding me back from living my life. I didn't want to apply for certain jobs because I knew I couldn't get away with calling in sick for my period in that position. I have had to fight some bosses over my needs around my period for years, and this has lost me the chance to get scheduled for better shifts or in better positions. And due to all of my health issues, I've never been able to focus on a career. I'm 30 with a college degree and I'm still doing shift work. It's not below me. I have a lot of respect for us shift workers. I'm paid well, I like my job, I like my co-workers and boss. I'm not complaining. But if not for endometriosis and my other health issues, would I have a career going by now? And given the fact that I don't make a salary, am I worth a $14,000 surgery?

I received my GED at age 16, married at age 19, and graduated college at 20. I was set up so well for a life with a good career and children. 10 years later, none of that has happened. My husband and I are happy together, but we're both very stressed by money, careers, health issues, and living within our needs. His career is very difficult because it's facing budget cuts at every turn, and his Master's degree isn't enough, but a doctorate doesn't guarantee a job. So am I worth a $14,000 surgery when we have these huge struggles? Would I be financially better off not getting medical treatment at all, and therefore not working? I could save money by just being disabled at home, not contributing to the work force. But I would be miserable. Is being miserable financially smarter, and could it lead my husband to more happiness if he didn't have to work as hard to afford me, someone who can't work much?

Don't misinterpret this post -

I'm not degrading myself. I'm not putting myself down. I believe I made the right choice. If I were evaluating another person in my situation, I would say that we each only get one life to live and all life is equal. Everyone deserves to live life in the healthiest way they can so that they can participate in life the most fully. I might have self esteem and confidence issues, but I know my value is the same as any other person. I carefully considered the pros and cons of this surgery over years. I've talked to countless people who have had it done. I've discussed with multiple doctors. It was a carefully made decision.

But what upsets me isn't that I have to spend this kind of my money for my health, it's that many people simply cannot afford the surgery or treatment and have no choice but to suffer. Why do I get to have the surgery to help me when others might suffer worse than me and can't have the surgery? I accept that the medial system is the way it is in the USA - I am all for improving it, but I can't afford the stress to worry about it. So I'm not. It simply is what it is, and until something can be done to improve it, I just accept what it is. I'm thankful for the good the medical system can do me, and my doctors and all the staff and nurses were excellent and I really appreciate all they did for me. But in the end, what makes me special?

Just some of my thoughts, but I hope my experience helps some of you make the right decision for you. After this Post-Op appointment I'll write about the surgery experience itself. 

To the Skeptics Who Want Me Off My Supplements...

It's amazing how quickly the mental and brain symptoms come back when I don't take my supplements. I've only been taking my supplements on days I work so that I can manage my job, but I'm trying to keep off of them as much as possible so I'm prepared for doctor visits (whenever they finish reviewing my referral.) This is only the second day without taking my pills, and the negativity is strong within me. Anger, doubt, depression, apathy, dismissiveness, hopelessness... that dark grey cloud is moving back in.

It makes it so hard to think clearly about my situation or make plans. Right now I just want to quit everything and throw my hands up in the air, giving up. Giving in. But I know if I used my progesterone, took my lithium, and drank my inositol powder that I'd have a different attitude on the matter. That it would be worth continuing to fight.

And the brain fog! Did I just go to the bathroom? I'm not sure. Do I feel like I need to go? I thought I did need to earlier... so maybe I did go? Yes, these are the thoughts I have about many parts of life.

Cravings for carbs and sugars are coming back in a big way too. I'm not as stable with my diet. I'm not supposed to have any starches and I know it's true because I don't feel well after I eat them. But I'm craving starches now. Some need in my body has been met by something in one of my supplements, just not sure what that need is.

I hate this limbo. I really need my appointments to get scheduled so that I can have less anxiety about not taking my supplements. I'm also kind of irritated that they work this well, because it means I'll still have to take them all for a while longer. I'm getting pill fatigue. Why is my body refusing to heal more than it has? I'm investing so much into regaining my health, but my body is saying, "Nope." Ugh.

I'm getting very impatient about finding out what I need to do to continue improving or coming to accept that I can't get better. That this is the best I'll be. I'm getting annoyed by having hope and perseverance. I just want a final answer.

Don't Tell Me, "Just Exercise!"

I get pretty upset when people tell me, "Just exercise more! Exercise cures everything!" It shows they have no understanding of my illness. It also shows that they don't notice how much exercise I do get and how proud I am about it. I lift weights at home, use my Pilates ring, go on 1-2 mile walks a couple times a week, and work at a job in which I'm on my feet the whole time. I also do 50-100 jumping jacks at a time when I have adrenaline rushes to burn off, and that's almost daily. To you this might sound like a joke, but to me it's more than I was able to do a couple of years ago and I'm very proud of my progress.

On a day like today I can't simply just get up and exercise to fix my symptoms. My head feels like a hot air balloon, like it might float away. It's making me dizzy, and when I get up the POTS symptoms kick in. I instantly get clammy with sweat, my heart rate skyrockets, my heart palpitates, I see colors spinning all around me and my vision blurs, and my muscles loose strength. It's as though I'm on the verge of fainting, but I don't faint easily. PMS made me faint once, but I'm not PMSing right now. I must let myself sit down or drop to the floor until my heart calms down and my vision returns. Then when I stand back up again I have to do it very slowly, and I might start feeling the symptoms again if I start walking too soon. As long as I'm still I feel okay, but I can't stay still for too long without my blood pressure getting too low and I crash.

I'm not feeling like this every day. I don't feel the POTS symptoms every day. Other days I can just have fatigue so strong that even walking around the house makes the fatigue worse. On days like that I have to do nothing. My body is begging for time to rest and repair, and if I dare try to exert myself it's going to give me the equivalent of the Blue Screen of Death (the worst error message your computer can give you.) On days like this I don't necessary get dizzy with high heart rate when getting up. I just have to force my muscles to move, because they really really don't want to. It's more than just willpower to move my legs, it's necessity. If I don't walk to the kitchen I won't eat. If I don't eat I'll get hypoglycemic again. If I get hypoglycemic I might be so far gone that I'll go into a coma. Of course I get terribly anxiety on these days, so I can't just lay in bed resting. I have to somehow shut off my brain with homeopathic pellets and pills. They can leave my brain too numb to enjoy anything, but not let me just fall asleep.

Some days I think I'm having a good enough day and I do go out for that long walk, only to come home and measure my blood sugar in the 60's or so. I get symptomatic when my blood sugar falls below 85 - and before you argue that's a healthy number, you need to understand that my body can't handle being below 85 even if your body feels best at that number. When I'm at about 85 I start to feel the tremors and shakes, the low dull headache, the mild tunnel vision, and the deep cold start to settle into my body. We all have different bodies with different needs.

I'm not getting low blood sugar quite as easily these days, but my diet is so careful and I still take my chromium with pancreas glandular. I'm also having fewer days with the severe chronic fatigue that forces me to do nothing all day. I'm recovering faster from over excretion, and I'm finding that I have more days where going for that long walk doesn't make me crash. I never come home from that long walk feeling better than before I went, it does take a lot of energy for me, but I'm finding I crash less often after my walks. That said, what if I over exercise to try to improve my health and end up going backwards by overspending myself? I don't want to lose any progress I've made with my health. I need to be careful with how I spend my energy.

...But I am having more and more days when I go to work not feeling rested enough to handle the shift without some sort of boost. I used to only add matcha to my water bottle on days when I really needed the caffeine, but it's turned into needing that matcha every shift, 4 days a week. I haven't had a shift in a few months in which I've felt able to work without the caffeine. So I can feel myself sliding backwards from over extending myself. Ideally, I'd take a few weeks off of work to let my body fully rest, but financially I cannot afford to do that. It also wouldn't be fair to my co-workers. And that job is physical. It is exercise for me. Being on my feet for 4 hours, walking around the store all day, lifting heavy boxes, going up and down from bottom shelf to top shelf... I feel my best in jobs like this. My blood needs to keep moving to feel well. I'd do so much worse at a desk job. But it's very draining. I do so little at home because I save up all my energy and strength for being at work.

I'm getting so sick of hearing, "Just exercise!" If you're able to say that to me, you clearly have never experienced this level of fatigue. Don't argue with me. Arguing makes me angry and drains me way too quickly. Anger doesn't settle down for hours in my body. My body can't processes strong emotions well. My adrenals can't keep up with the energy strong emotions take. All I'm asking is that if you want to give me a suggestion then please don't give it to me as a demand. Don't tell me what to do. Respect my needs. I'm very open to suggestions when they're given to me in a gentle non-judgmental manor after I've been listened to. But don't come on strong barking orders at me when you haven't listened to what I'm going through. I'm likely to shut you out of my life and ignore you as a defense.  

Results of New Supplements and Going Off All Supplements

I've had a rough month. Winter is never easy for me, but I chose to do some experimenting despite winter. I want to record some of what I've learned here.

1. Lithium Orotate

My doctor suggested I try this based on my gene data (23andMe.com). Lithium Carbonate has been traditionally used to treat bipolar disorder, but I've been taking Lithium Orotate. The difference is that carbonate isn't stable and a person has to take over 1,000 mg of it at a time to absorb enough to make a difference. Orotate, on the other hand, is highly absorbable and can be taken in small doses. I'm taking 5 mg a day.

For the first couple of weeks it made me feel a bit high - giddy, could laugh really easily, smiled for no reason at all, and had pleasant dreams. That effect wore off and I went back to "normal," except that I've noticed I haven't had nearly as many dark, depressing, lethargic, and apathetic thoughts. I originally started on inositol powder to help with my mood and energy. It did make a mild positive difference, but the lithium has done more.

I have also had regular large, deep, painful cystic acne since starting the lithium. I thought it was from taking the liver glandular, thinking it was detoxing me through my skin, but the problem has continued. I then learned from someone else that lithium gave them the same kind of acne. I'm now trying to decide if the better mood from lithium is worth this painful large acne.


2. Selenium

My doctor also suggested I try selenium for the same reason as trying lithium. Low selenium contributes to thyroid disorders, and my thyroid is disordered. I started and stopped the selenium twice. The first time I tried it turned me into a total zombie: very lightheaded and weak, dizzy, and unable to focus. I developed these symptoms immediately. A few weeks later I tried it again. It took 2 weeks before I developed the same symptoms. It gave me vertigo so strong that at times I couldn't walk in a straight line. So I stopped taking it. I didn't notice any other effect or benefit.

They say that the soil here in North Dakota is rich in selenium. I eat mostly locally grown organic foods, so I'm hoping this simply means that I'm getting enough regularly through my diet.

3. 4-point Saliva Cortisol Test/ Going off all supplements for 2 1/2 days.

I am very likely going to write a post on the results and preparation process when I get them. This is about the results of quitting all supplements for 2 1/2 days in order to do the test. I joined an adrenal fatigue support group on facebook based on the book Stop The Thyroid Madness. They say that it's very important to be off all supplements for 2 full weeks before doing the cortisol test, because you have to get all adaptions and other things that affect cortisol levels totally out of your body to see how your body does without support. I couldn't handle being off my supplements for 2 1/2 days, so I went ahead and did the test. I understand that some people think this will ruin the test results, but I honestly do not think it is safe for me to be off supplements any longer.

What happened?

- My blood sugar plummeted. With supplements it stays between 95-115 most of the time. Off supplements (I measured about once an hour for 2 days) I was staying between 72-98, most of the time I was in the 80's. I start to get symptomatic of hypoglycemia when I'm below 90, but below 80 I can't function. I was hypoglycemic a lot in the last 2 1/2 days. I did not change my diet of eating protein every 2 hours. (Keeping in mind that the adrenal glands do heavily affect blood sugar, and I stopped supporting my adrenals.) This morning (now that I can go back on my supplements) I did a test. My blood sugar was 84 when I got up, then after a protein shake including licorice (which affects the adrenals) it shot up to 124!!! That's a huge difference very quickly! I'm looking forward to going back on my pancreas glandular with chromium, which really helps keep my blood sugar stable.

- Heavy menstrual bleeding just 2 weeks into my cycle. My diva cup was full, and it was very dark and clotted.

- Blood pressure got wonky. I didn't see it ever dip below 95/58, which isn't much lower than I occasionally get even when on my supplements, but my pulse pressure narrowed by about 10 points on average. Pulse pressure is the distance between systolic and diastolic, and a healthy pulse pressure is about 40. My pulse pressure was often 25-30, but I had one reading of it at 55. This isn't stable for me. I'm generally around 30-40 when on supplements, even if my overall blood pressure is on the low end.

- Disturbed sleep. I couldn't take any sleeping aids for 2 nights, which was torture. Both nights it took hours of just laying there to fall asleep, even though I was exhausted from work. Once I got to sleep I found myself waking up every couple of hours. Small sounds in the house would also wake me up. I wouldn't feel rested during the day. Last night, after finishing the coritosl test, I took my sleep pills. They normally take about hour to kick in, but they made my whole body tingle and shut down within about 10 minutes. I felt like I was fighting sleep, but after shutting the light off and trying to sleep I couldn't fall asleep for probably an hour. Once I did fall asleep I stayed asleep, thankfully.

- Couldn't find joy in doing anything, even things I liked. The first day wasn't so bad, but the second day (yesterday) was awful. Everything felt like work, most things annoyed me, and nothing was enjoyable to do. I was apathetic, but worse than that, I felt emotionally muted.

- Poor memory. I found it hard to recall information, remember how and when something happened, and found it hard to retain the instructions I was reading over and over. After only 2 1/2 days without supplements! This shows how sensitive my body is.

- Poor vision and balance. A big part of this was being hypoglycemic, but even when my blood sugar was in the 90's I would have sensations of the floor moving below me, me swaying when I was not, and objects in the distance vibrating when they were not.

- Joint aches, but surprisingly no fibromyalgia. I was feeling very inflammed.

- Digestion plugged up. I gained about 5 pounds in bloat in the last 2 days, and my IBS is acting up. I did actually take my digestive enzymes to help, but they didn't help much. I was having regular bowel movements, but staying bloated and food wouldn't move through me well.

- Intense fatigue, but not constantly. I was able to work for the first 1/2 day and the second full day without supplements, but I was dragging and "flight mode" was kicking in a lot when I was encountering minor problems. At times it took willpower to lift my legs to walk. Yesterday I had trouble getting up and moving at times, but had weird spurts of jittery energy in which I was able to run up and downstairs to do laundry.


What did I learn from all this? That my supplements really are doing me good! I was able to write this post because I'm finally able to drink a cup of green tea, which tastes like heaven right now. My adrenal glands still have A LOT of healing to do, even after 3 years of trying to repair them. I don't need the test results to feel this, but I'm very curious about how my results will look.

Iron and Acne

What an obnoxious winter so far! We've had about 60" of snow in just over a month. It's been a blizzard almost every Monday! Between the snow blowing, shoveling, roof raking, salting, being unable to leave the driveway for days waiting for snow plows to free our street, and trying to get hours in at work... you get the picture, between all of this I've been rather burnt out and exhausted. It's been actually very hard for me to even move some days due to the burn out. Instead of working on Part 3 of my mattress series, which I'll finish up soonish, I'm going to write about something a little easier: iron and acne.

My naturopathic doctor had me start taking pasture raised liver capsules 3x a day about a month ago. He wanted me to simply try eating liver first, but my tongue couldn't handle it and it made my stomach churn a bit. If you can tolerate liver, more power to you! The reason for the liver is to raise my iron level. Without telling him, I tried taking Black Strap Molasses with 29 mg of elemental iron. I've tried taking iron in the past during my teen years and it did help me feel way more stable and in control, so I decided to try it again to see what would happen. What happened was that I didn't feel any different at all (except for a little sugar high at times, and my yeast issues increased), but my lab values showed much better numbers:

End of 2015, Iron at 66:



If you go by Stop The Thyroid Madness's book/ support group, I was too low:




So after one month on those iron pills, my iron and CBC looked better than ever (almost everything was actually in range for the first time in years):



According to Stop the Thyroid Madness, my labs still are not optimal here, but they look much better.

My doctor received this lab and sounded a bit confused, and I told him I was on the iron. He wasn't happy with me. And THIS is why you listen to your doctor! He explained that I was "pushing" my iron without all the co-factors, which I understand to mean is disruptive to other minerals and nutrients in my body. He said if I'm going to push my iron I need to do it with all the co-factors, and the best way to do that is to take pasture-raised liver.

I've been on the liver for a little more than a month, but I have not had new labs drawn yet. I would like to do so soon so I can see what is happening. What I can tell you is that it's working. Taking the iron pills did not change how I felt. Taking the liver is changing how I feel. I haven't felt anemic and faint since taking them! I've felt weak from not being able to breathe well, low blood sugar, and maybe even low blood volume, but not the anemia-like weakness. I feel strong even while fatigued and exhausted. I'm not used to feeling strength below the tired.

There have been plenty of side effects, though. The liver pills are certainly stirring up my liver, which is not in great condition. I've had lots of rashes, acne, nasty prolonged PMS, and a much heavier period. This makes sense considering the liver does help make sex hormones. It also is the first detoxer in the body. My stirred up liver is pushing toxins out through my skin, causing the rashes and acne. Add hormone issues to acne issues and I get super acne issues. It's not been fun. The majority of this acne has been under my jaw near lymph nodes, which also makes sense to me.

So what do I do about acne? What helps?

STOP EATING SUGAR! Sugar does nothing positive for the body, only negative. It's highly acidic, makes the pancreas and liver work overtime, feeds bad bacteria and yeasts, feeds infections, penetrates a weak gut lining, usually goes right into fat storage, causes hormonal imbalances... and the body tries to detox it through the skin.

Figure out your food intolerances. For me, dairy and grains both gave me acne and I didn't figure that out until I first went gluten free for a year, then dairy free for a while. My skin improved so much. Then I met my doctor, who had me cut all starches, grains, dairy, sugar, moldy foods, and nightshades.  I stopped getting acne except around my period, and it cleared up very quickly after my period started.

Okay, got those down? Good, now what to do about acne that defies preventative causes:

Aztec Indian Healing Clay mixed with Bragg's Apple Cider Vinegar as a mask:

The darker areas are where it went on heavier. I simply pour about a quarter sized amount of clay in to my palm then pour just enough vinegar in my palm to make it fizz and turn into paste. Then I rub the paste in my hands and spread it all over my face and neck. I let it sit for 20 minutes, then typically shower to wash it off, but a wet warm cloth to scrub it off will do. It pulses my skin in the process, and after I wash it off it feels like my skin is breathing. The vinegar leaves my skin pink/ red for about 20 minutes, then my skin looks so refreshed! This stuff sucks junk out of pours with a magnetic bond. It feels amazing. The vinegar feeds the skin nutrients and kills bad bacteria. I love this stuff.

Note: French Green Clay is supposed to be the best kind of clay for acne, but I haven't tried it.

Desert Essence Blemish Stick

This is one that I reserve for bigger, more painful acne that I want to get rid of faster. It does work well, but it's a bit drying and irritating to my skin. It features tea tree (and this brand makes a high quality trustworth tea tree, it's not a knock-off or low quality version that other brands use.) Tea Tree is antibacterial and it does help clear up rashes and acne for me. I use this brand's tea tree soap for rashes. It does work, I just have to be careful not to over do it.

Badger Balm Beauty Balm

I'm a huuuuugggeeee fan of Badger Balm products in general. They're mostly organic and use safe low doses of extracts and essential oils that are strictly for a purpose, not a fragrance. I can't tolerate their orange oils, but I've done very well with all their other aromatherapy products, when I don't tolerate many essential oils in general. I typically stick to their unscented line anyway since I don't care for fragrances anymore, even when I don't react to them.

This beauty balm is ultra moisturizing, but doesn't clog pores. It has seabuckthorn, an oil known for healing skin blemishes. I find that this balm is anti-itch, soothing, cooling, very moisturizing, and noticeably healing. I when I'm broken out I use it as my face moisturizer, let it soak in for 15 minutes, then apply my Lauren Brookes Cosmetiques or Mineral Fusion make up.


Organic India's Amalaki
Make sure you're getting enough real whole food vitamin C. I really like Organic India's Amalaki, which is rick in vitamin C and has the ability to pull out oestrogens. Basic abscorbic acid (what's used for "vitamin C" in synthetics) is often made from mold, yeast, or with high VOC chemicals like formaldehyde. It's also incomplete - it needs bioflavanoids to complete the vitamin C, so why not just take a whole food version that doesn't have to be reconstructed?

I keep reading about Camu Camu being a great source of vitamin C too, but I like the alma berry (Amalaki) better because it has the oestrogen balancing effect.


Additionally:

• Eat your fats: drink bone broth, eat coconut oil, drink collagen, eat gelatin, eat the fattiest cut of steak, eat avocados, use real butter, etc. Your skin and brain need good healthy fats in order to function. Make sure you're feeding yourself what your skin needs.
• Drink organic fair trade green tea (certifications are important since non-organic green tea can contain high amounts of fluoride, aluminum, and pesticides.) It's a natural antioxidant. Then press the used wet green tea bag against your acne!
• Get chiropractic adjustments. Freeing up nerves that can't communicate well due to a spine that's out of alignment can significantly increase circulation in your body, and better blood flow means faster healing.
• Use a pimple popping tool for the ones that are ready to pop. In my experience, popping the ones that are ready with this tool doesn't leave scarring or bleeding.

Let me know in the comments if you have more good advice!

Latex Mattress Review Part 2: The Bed and Bedding Review (Updated!)

If you read part one of my review on my new latex mattress, you will have learned the need for choosing a natural non-toxic mattress. I encourage you to at least skim that post before reading this view, because this review is based on my need for a natural bed.In this review I'll cover 4 bedding items I bought from Sleep On Mattress: The Pillow, Foundation, Mattress, and Mattress Pad. In the upcoming Part 3 I'll discuss other pillows, sheets, and blankets. Bedding should not be as complicated as it, but because it is, this review deserves 3 parts to cover it all!

The Pillow: Malouf Convoluted Contour Latex Pillow
(Click the link to see the pillow on the company's website)
Yep, the name is a mouthful, as my husband was quick to point out, but bear with me! After too many dollars and too much neck pain from buying several different pillows online, I decided to try something novel: going into an actual store and trying out pillows before I bought them! The problem is that I can't step foot into most stores without getting sick. Thankfully for me, Sleep On Mattress is a store in Bismarck, ND, where I live, that caters to people like me. They offer natural synthetic-free bedding, and they're located in a mall that isn't heavily scented (like most malls are - I normally would never dare step foot into a mall.) I learned about them because they advertised their organic latex beds through the health products store I work at, Terry's Health Products. Amazingly, the very first contoured latex pillow I tried in the store ended up being a winner! It's a Malouf pillow, but done right (I tried others of this brand first, which I'll get into in Part 3.) It is made from natural talalay latex in a polyester case, so I removed the polyester case and replaced it with an organic cotton zippered case:

I love this pillow. So. Much. One side has a higher loft than the other and it's contoured, so it supports my neck if I'm on my back or side and it doesn't put too much pressure on my ears. It's soft and supportive without being hard and firm, meaning that it keeps my head at the right height and angle all night, whereas other latex pillows I tried let my head sink down to the mattress or didn't let my head sink in at all.

The latex on the pillow falls apart very easily, and that is my only complaint. It needs to be treated gently. Sorry folks, this will not work in a pillow fight. In simply switching out the cases I lost lots of small chunks of latex. You can see in the photo that some of the points are missing. I haven't had any problems with losing latex since then, and it hasn't affected how comfortable and supportive the pillow has been for me.


The FoundationI do not have a brand name on this foundation, my apologies. This was the hardest part of purchasing the new bed. Let me back up a bit. My husband was willing to try a new mattress if it meant improving my health, but he did not want to lose the frame we already owned. It's an upholstered queen size frame with a built-in head board that looks very nice. I also like it, so I agreed we could keep it (even though it's all synthetic and probably has plenty of flame retardants, it's old enough where it has off-gassed, the mattress doesn't actually touch the frame at any point, and we hardly ever lean up against it.) That meant we needed to buy a traditional foundation to support the mattress, because the frame is meant to hold a foundation.

(Latex and Memory Foam mattresses cannot use a box spring. They need to be supported by a foundation with no more than 3-4" between each slat. The mattress will wear out too quickly on the wrong type of foundation or on a box spring, because they'll allow the mattress to sink in when it should never sink in at any point.)

I looked into a couple of different options: a Savvy Rest Insert without any synthetic material concerns (sold by Sleep On Mattress), a much cheaper basic wooden foundation with a removable synthetic cover that had flame retardants (I don't have a brand name on this) (also sold by Sleep On Mattress), and a solid wooden Amish foundation that was on sale on Amazon.com. If money were not a barrier, I would have chosen the Savvy Rest Insert without question. It really was the right choice for us, but our finances said otherwise. The basic affordable wooden foundation with the removable cover made me a bit nervous - did the wood absorb some of the flame retardants? For someone without MCS it would have been a great option. The Amish foundation on Amazon looked like it would fit my needs very well, but there were just enough reviews cautioning me against buying it. Then we were presented with a new option: Sleep On Mattress had one metal and wood collapsible foundation for sale. The price was right at $130, it appeared to be right for our needs, and it was easy to transport because of the collapsible frame. My husband chose to go with it. Sleep On Mattress does not normally carry it, but I bet they can order it for you if you're interested.

The foundation has been working just fine, but if I were to make the decision over again, I probably would have tried to convince my husband to get the Savvy Rest Insert instead.


Setting this foundation up was not at all as easy as it was supposed to be. This photo shows the foundation after we opened it up from the collapsed form. We then attempted to put the two horizontal support bars on. The idea is that the end of the bars go into holes - they should slide right in. The reality is that the fit was very tight and they required a cloth and a hammer to force in.



Then we inserted the wooden boards across the top. The ends of the boards have plastic caps with two little pegs in them. The pegs go into holes in the metal frame to support the boards. 3 of these pegs were broken off. The construction was fairy poor on these pegs, and I wouldn't be surprised if most of them break off in tearing down the foundation - if we ever do that.





We then put an old sheet over the top of it as the cover. It came with a synthetic flame retardant infested cover, but the cover came separately so we simply didn't put it on.

Even though the wooden slats are flexible and look thin, the foundation has worked well. It is supporting our 150 lb latex mattress.

...But it's also a bit squeaky. This was my greatest concern when buying a metal foundation, and it proved to be a bit of an issue. The squeaking is only on my side of the bed, and I only hear it when I get in and out of bed. Thankfully it never squeaks once I'm already on the mattress. A wooden foundation can squeak too, but squeaky metal tends to be higher pitched and it echos through the rest of the foundation.


The Mattress: Sleep On Mattress's own Latex Mattress

The mattress we chose to go with is Sleep On Mattress's own brand of a 9" Dunlop Latex mattress with an organic cotton and wool casing. The wool is the fireproofing that brings it up to industry standard, so they didn't have to add synthetic flame retardants. They have it manufactured for their own store. They explained to me that they were searching for a natural latex mattress comparable to Savvy Rest (an organic latex mattress company that's top tier), but with a lower price tag. Making their own ended up being the most economical, and the mattress is therefore more affordable than the Savvy Rest. It is normally $2,000 for the queen size, but in exchange for this review I was given a reduced price. If you are interested in this mattress, but are not from Bismarck, don't despair! They will ship!

I was told that they are in the process of making different models of their own store brand of latex mattress, some with gel and foam added in, and with different heights. So if the mattress we bought from them doesn't sound right for you, ask about their other models. The owners are interested in working with you to find what you need instead of pushing their agenda on you. They'll help you find what you need, and they do understand the issues between natural and synthetic mattresses!

When we purchased the mattress I expected this review was going to be very easy to write. I expected within a week I'd be able to write all about it with ease, but that hasn't been the case. 3 weeks later and we're still trying to make a decision on the mattress! This isn't a bad thing, and I'll explain:

First and foremost, is the mattress solving my MCS problem? Was it worth purchasing a natural mattress to better my health? YES! On the old memory foam mattress I regularly fought a rising heart rate every night I went to bed, and if I couldn't fall asleep before my heart rate skyrocketed, I'd be doomed to toss and turn and take even more herbal sleeping pills to try to knock myself out. I regularly had stress dreams and nightmares. I would often feel high anxiety as I was trying to fall asleep and again when I woke up. I experienced more fibromyaliga pain in that bed than anywhere else. I also had more skin rashes when I slept in that bed.

I haven't had a single nightmare or stress dream since sleeping on this new latex mattress. I have not experienced the skyrocketing heart rate on most nights (but I had the problem on a few nights after a food reaction or being in a public place where I was reacting.) I'm waking up feeling peaceful, not on high alert. The fibromyaliga pain has been greatly reduced, and I'm feeling it more after eating the wrong foods and not so much in bed. My skin rashes are reduced, but not gone (but there are other causes, such as the mycotoxins in my body.) Yes, I feel SO MUCH BETTER on this mattress, and my sleep is higher quality.

Secondly, is it comfortable? Yes... The floor model of this mattress was softer than the one we received. The floor model was about right for us, in that it was firm enough to give support, but comfortably soft around pressure points. My hips and shoulder sank in the right amount. The mattress we received was definitely more firm. It didn't let our pressure points sink in much, and my husband and I both woke up stiff and sore for the first week. The longer we sleep on it, however, the softer it gets. We've had it for 3 weeks and both of us are less stiff and sore, and I'm feeling my hips and shoulders sink in further. At first we were seriously discussing buying a topper to soften it up. Sleep On Mattress offers a soft dunlop latex topper in 2" or 3" that is of the same quality as the mattress itself. We chose not to purchase the topper because the mattress continued to soften up. It's still not as soft as the store model. I went back into the store and tried it out and I could immediately feel the difference. It is, however, finally feeling comfortable for me. If my husband decides it needs a topper then we'll go with a 2", not 3", because we both like a slightly firm mattress. 3" would probably soften it up too much. All we would want from the topper is softer pressure points.  (Update: we bought the 3" topper, and it's so so so so much better than expected: please see my review of it below.) If you're the type of person who needs a firm, but comfortable and cozy, this mattress will probably be perfect for you. It's not nearly as firm at the floor, thankfully, but if you feel best sleeping on the floor then you're probably not shopping for a mattress anyway.

One adjustment I had to make to reduce my shoulder pain on the new mattress was lift my pillow up a bit. I'm a side sleeper, so a little more loft was all it took. I did this by adding a homemade organic cotton pillow under my latex pillow. I made it a while back to try to add loft to other pillows I was trying to make work for me, but that failed because the pillows I was trying to make work were simply wrong for me. I made the pillow very flat, so it only adds about half an inch, but that was enough in this case. I'm noticing that as the mattress softens up with use the pillow is starting to feel a little unnecessarily high, so it might continue to soften up enough that I no longer need to use the second pillow.

Third, how easy was it to set up? Well, let me be clear: this is a 150 lb mattress that comes compressed and rolled up into a tube. It's not easy to transport due to the weight and awkward length. Once it's unrolled, it's like trying to move a queen sized piece of Jello that weighs 150 lbs. Once the mattress is set up, leave it set up. Don't plan to move it. My husband and I were able to carry it out of my truck, up the stairs, down the hallway, and into the bedroom. By "carry" I mean slide on the carpet as much as possible. We were able to unroll it, get a full encasement allergy cover on it, and then get it in place on the bed. Nether of us are that strong. Neither of us want to do it again. But it was well worth it, and we quickly forgot about the hassle after a few nights of sleeping on it. And if setting it up yourself really bothers you, have the guys at the store do it for you. ;)

It came in an awkward box:



It was plastic wrapped to keep it rolled up and compressed:




Removing the plastic made it quickly decompress and unroll, before we could control the process. First thing we did was slide this allergy protector on it, which was the biggest pain of all. I'll explain which allergy cover I got in Part 3. We had to lift the mattress and pull up the cover an inch at a time, which was very tedious and difficult. I forgot to get a photo of the mattress before the cover was put on, so I pulled back the cover for this photo so that you can see the organic cotton and wool casing. Notice how the mattress falls like jello off the end of the foundation to the floor:

Set up and made our bed (forgive all the clutter, we had to push our stuff out of the way to set up this bed). As you can see, it's thinner than most mattresses. Our former mattress was 12" thick, and this is 9" thick. Big difference! We're closer to the floor, we don't have to jump up onto the bed to sit on it, and best of all, we're not stretching out our sheets! We have deep mattress sheets, but even they would come untucked on our old mattress. Our blankets hang further off the sides of this bed, which means we no longer have cold air attacking our legs in the middle of the night!

Final verdict (which I will update in another few weeks to see if it softens up more):

The mattress was worth it! While I would prefer it to be a bit softer, it is comfortable now that it's had time to soften up. I love that we have the option to add a latex topper of the same quality if we choose to soften it up more. The latex feels better than the memory foam in that I can adjust my sleeping position on it easily, whereas the memory foam mattress wrapped around my shape a bit too much to make it easy to move. I love that I'm getting better, deeper, more restful sleep on it! I'm not reacting to the mattress at all, so my body can actually relax at night!

If you're intrigued by all the benefits of this mattress, but the firmness worries you a bit, Sleep On Mattress does sell other latex mattress options. They carry a Talalay line that has some synthetics, but is mostly natural. They also carry the top-of-the-line Savvy Rest mattresses, which are certified organic latex mattresses. They had a couple options in the store to try in this line, and they have different feels. Again, this store is awesome because they will work with you. And they do ship! You don't have to live in Bismarck to buy from them!

UPDATE 12/22/16 - Latex Topper:The mattress continued to soften up and my body began to adjust to it. I actually found it to be comfortable and would have been happy with it as it was. My husband, however, still found it to be too firm, so we ordered the 3" soft topper. He decided against the 2" because he wanted to make sure we bought the best topper and not take a chance on a thinner model that might not have been enough for him.

I'm being sincere when I say that the mattresses was comfortable before the topper. But I'm also being sincere when I say that the topper is an AMAZING addition! I was worried it was going to soften it up too much, but this latex is amazing in that it softened it up a lot for my husband (who is obviously heavier than I am) and didn't soften it up much for me. The topper is very supportive, but lets pressure points sink in easily. I was worried about losing support by going softer, but I didn't lose any support while gaining pressure point relief! I stated in the original post that I needed to prop up my pillow so that my shoulder wasn't squished on the original mattress. I do not need to prop it up now. This topper lets my shoulder sink in the perfect amount and my head rests perfectly on the pillow. My husband went to the chiropractor, finally, and got rid of his back pain (for now - he needs go to regularly.) So he can say for sure that this mattresses and topper is not giving him back pain. He's sleeping very well, waking up feeling good (not stiff and achy like on the mattress before the topper), and is actually starting to compliment the bed!

This topper is normally about $400. Don't fear the price tag: it's worth it. Remember that latex can last 15-20 years if you take care of it. Most mattresses only last about 5-8 before you really should look into replacing them. So investing an additional $400 into a bed that is safe, healthy, won't make you sick, very supportive and comfortable, and very long-lasting is an excellent deal.

The ONLY thing I'm a bit sad about it is that we now have a 12" mattress + topper. Many of you might think this is better - it all comes down to preference. My husband likes the height better. For me it just makes it a tiny bit more challenging to put my sheets on. They are now a snug fit. I'm only 5'5", so I have to jump up a bit to crawl into bed.

I, of course, have photos to share:

It came in a much less awkward box. They were able to fold the topper in half before compressing it and rolling it up, so the box was actually very manageable. I could carry it up the stairs into the bedroom myself.


I was able to unroll it on the bed because because it wasn't awkward, unlike the mattress. The mattress was difficult to set up, but this was very easy.


It unrolled folded in half. What you can see in this photo (which I forget to get a good photo of for the mattress itself) is the organic cotton cover. This is the exact same cover (and type of latex) as the mattress has.



It does add some height, as you can see. You can also see how much padding it gives in order to soften up the mattress. Thinner versions are available (they're also cheaper), but I think it's good to see what the full size looks like when making a decision.

  (Sorry, excuse all my pill bottles in the background. I meant to clean up the bedroom before taking photos, but I only had enough energy to set up the topper.)



The Savvy Rest Cotton Mattress Pad:

I didn't purchase this with the mattress. I understood the benefits of it, but I thought the allergen cover might be enough for my needs. What changed my mind was reading up on how to care for a latex mattress, and I kept seeing that body sweat and heat can slowly deteriorate latex over time. I want this mattress to last me as long as possible (I've read 15-20 years when cared for correctly,) and I decided that I really don't want to have to wash the allergen any more often than necessary because it is such a pain to get on. The mattress pad is very easy to take off and wash, and it will collect any body fluids that get through the sheets. What really put me over the edge and made me buy the pad is when someone told me that they had a latex mattresses that molded. This really confused me, because latex is naturally mold resistant, and that was one of my biggest reasons for choosing latex over another natural mattress. She was not using a mattress pad. I wouldn't be surprised if the latex wasn't molding, but body fluid that got into the mattress was molding. She had mold toxicity in the past, and mycotoxins do sweat out of out of people with mold in their bodies. Either way, this made me decide to buy the topper. I do have a mycotoxin issue in my body, and I don't want mold to grow in my new safe mattress.

The topper is very nice: it's 100% undyed organic cotton with a stitching pattern to keep it from bunching. It is made slightly over sized so that it has room to shrink after washing. I washed mine in cold water with plant-based non-toxic detergent, and then I dried it by draping it over two dining room chairs and placing my air purifier under it. The air purifier creates quite the breeze on the high setting. Even after washing it properly, it did shrink to exactly the same size as the mattress. So that wasn't a problem, and it was very easy to care for.

I thought it might add a soft layer to the mattress, but it did not. At first it actually made the mattress more firm, but that was because I tied it too tight. After loosening the grip of the ties the mattress felt the same as it did without the pad.





Thank you for reading my review! Comment with any questions, and I'll be happy to answer them. You can look forward to Part 3, which will be on the bedding (blankets, sheets, etc) in a week or so. Let me get past Thanksgiving first. :) (Update - that might come after Christmas. This month is too stressful for me!)

Thank you so very much to Robert and Mike at Sleep On Mattress for this amazingly healthy mattress and for your wonderful high quality service! I've really enjoyed working with you both, and I cannot recommend your store enough!

Book Reveiw: Tox-Sick by Suzanne Somers

Several months ago my parents showed up at my place of work and handed me a book: Tox-Sick by Suzanne Somers. Yes, the author is the creator of the Thigh Master and was on Three's Company. She has become one of my favorite celebrities because of her work on educating the public about mold toxicity, multiple chemical sensitives and environmental illness, poor thyroid health, and the importance of eating organic.

It took me months to read this book. Between the brain fog, fatigue, inflammation, and generally feeling unwell, I've been finding it very difficult to read at all over the past couple of years. I read this book faster than any others since I've become sick. It was very engaging for a book on health, and my brain was hungry to learn more about how to heal. I read a couple of chapters about 3 times before I understood what they said, but it was worth struggling through processing the words. Understanding this, I hope you forgive me if I forget something or misrepresent something in this review.

I highly recommend that everyone reads this book, even if you're not sick. It will open your eyes to how you can protect not only your health, but the health of those around you. If you care about and respect humans, you'll want to read this book. It's certainly not the only book with this type of information, but it might be the easiest to read and understand. The entire message of the book boils down to the dangers of environmental toxicity common in our every day lives, how toxins are the root cause of most chronic illnesses (even affecting genes that cause illness), and how to protect yourself in this toxic world we've created. It sounds like a conspiracy theory until you read about the actual science behind it - there's actually quite a bit of research, much of which even the CDC and WHO acknowledge.

As I first started reading I was a bit worried it wouldn't be anything new, other than her personal stories of mold and toxin exposure causing her cancer and bloating. She spends many many pages slowly prepping the reader for what's to come later in the book, gently asking you health questions and lifestyle questions to motivate you to want to change your habits in order to become healthier. Because so much of this long introduction wasn't new to me since I've already been living in an environmental health nightmare, I ended up skimming over the rest of it.

What was helpful to me in this introduction was her granddaughter's story. Her 14-year-old granddaughter went to a clinic in Florida that I had been curious about. I quickly found out that only celebrities can afford the clinic, but the way they treat patients is something I hope other clinics can learn from. Her granddaughter's story was heartbreaking, but she was able to recover because of this clinic.

The majority of the book is long interviews with doctors. She interviews Nick Gonzalez, M.D. (may he RIP); Sherry Rogers, M.D.; Stephen Sinatra, M.D.; Gary Gorden, M.D.; Ritchie Shoemaker, M.D.; and Walter Crinnion, N.D. While the topic of each interview might not be new to people with environmental illness, many of the details were. I learned quite a bit from each of these doctors, even though I've read up on some of them before reading this book. Each of these doctors explains some root causes they've found in patients as well as offering advice for recovery. I'll include a photo of a page from most of the interviews, so you can get a taste of what the doctors have to offer in these interviews.

Dr. Nick Gonzalez's interview made me want to see him as a patient, but sadly, he's one of the over 50 holistic doctors that have been murdered in the past year (you can read more about this on the link in the last paragraph.) As a cancer doctor, he talked quite a bit about organ health. He digs into gut health, especially the role of bacteria in fighting and preventing cancer. He explains how environmental toxins, especially mercury, messes with our gut bacteria and stem cells that we need to sustain our life, which promotes the growth of cancer cells. He digs into the concept of "leaky brain," which is an issue of a compromised blood-brain barrier. His suggestions for healing are mostly focused on liver cleanses, and so he's a big fan of bentonite clay and coffee enemas. I was a bit skeptical of these suggestions at first, mainly due to assumptions about lead in the clay and coffee enemas being harsh on the colon, but it inspired me to do further reading on the subject. I'm much less skeptical the more I read up on these treatments, but I think that's for another post.



After his interview she digs into the rising issue of gluten sensitivities, borrowing research from some of the leaders such as Dr. Perlmutter (author of Grain Brain.)

This leads into an interview with Dr. Sherry Rogers on Environmental Illness. Her back story is very interesting. She went into Environmental Heath after formaldehyde poisoning from working on cadavers in medical school. She later was told that as a 35-year-old her bones looked like those of a 78-year-old's. She found out that the only way to manage her chronic pain was to eliminate all nightshades from her diet, even the spices like paprika. She had been through a lot, and it lead her to writing the book Detoxify or Die, which I'm interested in reading. She digs into Multiple Chemical Sensitivities, thyroid lab tests showing normal results when the thyroid is sick, nutrition problems such as with magnesium, and more.


Next, she moves into a chapter on the heart. This is the chapter that many people are going to feel most resistant to because it gives advice that's opposite of what our government's nutritional advice says. She digs into the necessity of eating saturated fats and the role of cholesterol. But don't just take her word for it or the word of the research she borrows from, read her interview with Cardiologist and Psychotherapist Dr. Stephen Sinatra. He explains how the low-fat craze all started when President Eisenhower had a heart attack. Ansel Keys conducted his Seven Countries Study and found that people who consumed the lowest amount of fat and the least heart disease, and that Eisnenhower ate a high fat diet. Dr. Sinatra then explains that Ansel Keys cherry picked his data to draw this conclusion, not being fully honest in the study, in order to prove his hypothesis. George McGovern was the secretary of health at the time and decided to set into motion the low-fat craze across the nation, based solely on Ansel Key's "research." This is when margarine was invented and "heart healthy" oils like corn oils took over the market. Then the Framingham study came out, showing correlation between high cholesterol and cardiovascular events. The correlation caused a mass assumption that cholesterol was a risk factor in heart disease. Dr. Sinatra then explains that this is when drug companies first started making statins to lower cholesterol. Dr. Sinatra was a spokesperson for statins, being paid very very well to promote their use. He said after a few years of promoting them, he started to see problems.

"Well, after a few years, we were realizing that something was wrong; we made all these changes to our diets, yet the incidence of heart disease was skyrocketing... Because of the food. Corn oil, margarine, and all the other new foods that were trans fats; we had not realized that these fake foods and poor quality oils were dangerous. What an irony; we gave up butter and steaks and got sicker and fatter! Then I had an epiphany relative to statins; I realized I was barking up the wrong tree. It was in 1993 when I read an article showing that statin drugs diminished CoQ10, which is a vital nutrient made in every cell in the body and is a major nutrient for the production of cellular energy. Also CoQ10 is critically important for the strong pumping action of the heart. I had started using CoQ10 with my patients a decade before, in the early 80's, and was very impressed; I was able to avert a heart transplant with a patient I put on CoQ10. So I had to ask myself this question: How can a statin drug that's supposed to be so good for the heart deplete it of CoQ10, the most vital nutrient for the heart to survive? It didn't make sense! Then I discovered that Merck Pharmaceuticals had a patent on CoQ10 in the same pill called Lovastatin or Mevacor, meaning they knew that statins would deplete the heart of CoQ10 but kept it hidden from the public. So I had to wonder, if Merck knows about this situation, why don't they exercise the patient? ...Probably because the drugs were selling so well, and the doctors had been convinced to believe they were so safe. ...Why alert people to a problem when the drug is the darling of the industry? ...Statin drugs are some of the top selling drugs in the world."

He then goes into much more detail on how to naturally treat heart disease and how fat is actually necessary to keep the heart healthy. VERY eye-opening interview!

Next, Suzanne explores the thyroid, digging into hormone replacement drugs too. This prompts an interview with Dr. Garry Gordon, a functional medicine doctor recognized for his expertise in chelation therapy and antiaging medicine. This interview, for me, was the weakest of them all because I've already done so much research into synthetic chemicals that are endocrine dispruptors (act like hormones in the body.) This is a fantastic interview for people who have not read up on this subject.


She then moves onto Dr. Ritchie Shoemaker. If you have been diagnosed with mold toxicity, I would be surprised if you haven't heard his name. He is behind the Shoemaker Protocol, and he is the world's leading researcher on mold toxicity. This interview made me angry, but more than anything it made me feel overwhelmed. The amount of energy and MONEY it takes to do follow his protocol is beyond what I can afford. Even if I had the money, how could I possibly do all the the work? What's going to prevent me from getting mold toxic all over again, when I'd then have to redo the entire program? Even though this interview left me feeling scared due to the reality check, I think it's one of the most important chapters in the entire book. Mold is a reality that every person faces today, and mold is not the same problem it was even 50 years ago. This is the first thing he says in the interview:

"Thank you, Suzanne. Well, that's a series of questions. The Leviticus discussion about indoor mold is one that people always will talk about, but we know that there were some rather dramatic changes in fungi (mold) beginning early in the '70's. The Pittsburgh Paint Company started adding a fungicide to paint so that it was easier to clean and therefore easier to maintain. The particular compound created mutations in fungi, and just about all the players that make people ill indoors now come out of this mutated line. The toxic compounds made by these mutated fungi I worry about having a different shape compared to the same compounds made my earlier generations of fungi. Our immune systems recognize this compound as foreign and create a much greater immune response to them than they did in the unmutatd form. So the simplest answer is no, the fungi we had then are not the same as they are now."

This interview is dense - very dense. He goes onto explain that 25% of the population have certain HLA genes that cause those people (of which I am one) to have a harder time detoxing from mold. He digs into how so many chronic illnesses are diagnosed as other diseases, like Parkinson's, but are actually caused by mold. There's so much information here that I can't possibly cover it well enough in this review. If nothing else, go to the library, find this book, and read this chapter.

Finally, she interviews Walter Crinnion, N.D. This interview focuses on how to clean up your home environment in order to heal. I read this chapter last night and I honestly can't remember enough of it, except that he's the scientific researcher for a certain enzyme brand that we sell at the store I work at. What really stood out to me in this interview is how he advocates colonic irrigations. Colinics have been my favorite therapy of all because they give me immediate relief and help my MCS more than anything else. I'm less reactive after a few colonics, until I accumulate more toxins in my colon. He really digs into the effect of toxins on gut health, the methodology of Natuopathy vs Western trained doctors, and how toxins affect the immune system. He explains the role of air purifiers, such as which types are worth it and which ones are not. He made a strong case against carpets:


The last pages of her book focuses on supplements she personally recommends, an appendix, bibliography and citations, and index. I skimmed over most of this since my doctor already has me on the supplements that are working for me, and I was very tired at that point.

I strongly encourage you to buy this book and read it. STRONGLY. There are some fantastic books out there that explain this information in better detail, but this book is so easy to digest and understand. It's so easy to share information from it with family members and friends. It's not daunting, and it's so packed with lots of valuable information.

Overall this book left me feeling depressed about the state of our world. What have we done to our world? It's horrifying! It feels like a 50's sci-fi movie in which humanity slowly dies off from a chemical invasion, except that it's actually happening. We're allowing it to happen. In fact, so many of us have bought into the idea that we're better off and healthier because of all the synthetics in our world today! Follow the money trail, and you'll find nothing but greed, not respect for humanity.

The book is also so important because it gives us this reality check. We need to understand the assault on human health so that we can protect ourselves from it. We need to learn the tools to recover our health, which is very hard to do when our environments are so poisonous. It all sounds like a conspiracy theory until you fall sick to chronic illness and no MD can treat you. I'm just one of too many people suffering poor health due to toxicity.

Have you read it? Please share your thoughts below!

Mycotoxins and Mold

My naturopathic doctor recently had me do a mycotoxin test through BiotrekLabs.com. The reason for this is because the lab gave him a test for free, and I got to be the guinea pig and try the test out. If the test was not free, I highly doubt I would have had a mycotoxin test done. As it turns out the test showed I have "alarmingly" high levels of all mycotoxins in my body:



I was given my actual numbers over the phone, and I can tell you they up to 3x higher than the top of the range. This is alarming - I was really surprised. Many thoughts ran through my head: Why isn't the mold killing me? Since aflatoxin is one of the most carcinogenic toxins known to man, why don't I have cancer when my body is full of it? Why am I not suffering a daily bloody nose, which is my typical allergic reaction to mold (I tested very high in allergies to most molds many years ago.) Wouldn't my symptoms be A LOT worse than this? Sure, I can hardly move some days, but I'd expect to be completely bed ridden with results like these!

Let's back up a little bit. The company who makes the test is not the most reputable, and accuracy is a concern here. For a $650 test I would expect highly reliable results. These results could be very accurate, but there's reason to question it. That said, it's no surprise that mold is a major player in my illness, and I do believe I am high in the mycotoxins for several reasons.

I've had some awful mold exposures in my life. I've always been so sensitive that coming into contact with mold would give me an immediate bloody nose with mild flu-like symptoms, while people around me were just fine. I lived on the coast in Oregon for my teenage years, a place that was naturally moldy due to constant high humidity. I could never visit the city of Bend, Oregon without getting very sick. Every single time I stayed the night in Bend, which was at least once a summer, I would end up with the flu after several bloody noses. I think a big part of the problem was that I am also allergic to trees that grow in that area, so it was a double whammy. When we moved to North Dakota from Oregon, we lived in a guest house for 3 months that was not in good condition. My mom and I disrupted a big bush of black mold on a sliding glass door in that house (I call it a bush because it was at least a few inches by a few inches.) Next thing I knew, both nostrils were pouring blood and blood was flowing down my throat. Mom grabbed a mixing bowl to collect all my blood and I filled it at least half full. I wanted to go to the ER, and I was sick with flu like symptoms after that exposure. Years later my husband and I moved into an old house in Boise, Idaho. At first it was hard to tell if there was mold or not - it was old, needed repair work done, but nothing obvious as far as mold. I was getting bloody noses at least weekly, but I tend to get them in Boise anyway due to the dry air. It was in that house that I started gaining weight rapidly, developed arthritis, started to rely on coffee and energy drinks, and felt my physical decline. One day the wall of the shower fell into the tub, revealing lots of mildew. I was very stupid at the time, assuming it was just mildew and as long as the lining of the shower got resealed onto the wall it wouldn't affect us. We lived in that house for 2 years. We moved back to North Dakota into my parent's house (my parents moved out as we moved in.) The skylight in the main bathroom was occasionally leaking, thankfully into the toilet itself, ha! One day it wasn't just a drip, it was an actual stream of water and a larger hole opened up in the ceiling. The repairman said he couldn't find any mold, but when we replaced the skylight we found that the roof board below the skylight was heavily rotted. The bathroom was renovated and sealed up, and the roof was repaired. Shortly after that, we had our windows replaced, and mold was found in the window frames. Thankfully, replacing the windows took care of the mold!

(The mold test kit's results for the main bathroom when the skylight was leaking into our toilet.)

I have a history with mold, as you can read. The question today is this: Am I still living in a moldy environment? My dad hired a company to test our house for mold. The results showed that the upstairs, where my husband and I live, had half the amount of mold as the outside of our house had (which is the base range.) The downstairs, where another family member lives, had double the mold as outside of our house. They called it "slightly elevated." For me personally, "slightly elevated" can mean "not at all safe."

Another clue as my biotoxin illness was taking the VCS Test (Visual Contract Sensitivity Test.) The idea with this test is that mycotoxins build up in our eyes, making it difficult to see contrasting colors. It seems very simplistic, and I'm not going to explain it well, so I encourage you to read about on this site. Dr. Richie Shoemaker (the leader in mold illnesses) highly recommends the test. I tested positive for biotoxins based on this test (the test was free):


We had a new washer and dryer installed this week, and when the guys from Best Buy removed the old washer we saw a couple issues. The backside of the washer looked mildewy, something I couldn't have seen before. The valve for cold water was corroded and leaking, something I couldn't have seen before. They were unable to install our washer because of that valve, so they shut it off so it stopped dripping, at least. We have no way of knowing if it was dripping behind the sheet rock, but it's very possible. But that's when it dawned on me: was I washing my clothes in a moldy washing machine? It was about 30 years old, had a leak, and probably wasn't cleaned properly for years. Are ALL of my clothes contaminated with mold from that machine?

So... knowing my history, you can see why it's no surprise that mold is an issue in my health.

Normal people who get sick from mold tend to get over it and regain their health after leaving the moldy environment. This is probably the least moldy environment I've been in for most of my life. You'd think that I should be improving, but my level was still very high on that test! It was that high after 2 1/2 years of a perfect anti-candida diet (no sugar, no moldy foods, nothing to feed mold), and a 6 month long Candida cleanse (which should have killed mold too.) Either my levels were even higher and they have come down with all this work, or what I'm doing isn't working and isn't killing the mold in my body. (Or the test isn't accurate, but I don't think that's a big factor.)

When I've looked into why my body doesn't recover from mold, I keep seeing research and articles talking about the HLA genes. Apparently, only 25% of the population have these genes, and those that do are highly prone to mycotoxin illness. I've been told that the gene makes it so the body recycles mold back into the body instead of excreting it out like in normal people. I have the genes. *IF* this is true, then how can I possible fight it? I could be recycling mold from when I was a little kid, right? So what hope do I possibly have? If I do mange to kill all the mold in my body, wouldn't I just get sick all over again from new mold accumulation in my body? Mold is impossible to escape!

So I looked at mold treatment options. The first thing that came to my attention is Ozone therapy. Apparently ozone IVs can cause mold in the body to implode, killing the biofilm and the mold itself. It's impossible for mold to survive in ozone. Sounds like a miracle cure that's easy, right? Nope! Ozone is HIGHLY toxic to humans. It's so risky that it's actually illegal, but there are doctors administering it. Strong people can survive ozone IVs, but someone like me? It's extremely risky. You will find many doctors who swear by ozone and its safety, but I am very cautious. Alternatively, I get treatments in a hyperbaric chamber at my Naturopathic Doctor's clinic. This chamber is oxygen therapy, which can do the same thing as ozone, only much much much more safely. The problem is that I don't live near my doctor's clinic, and I'm unable to get treatments more than a few times a year. I have yet to find a hyperbaric chamber anywhere in the city I live in. I've been told to drink food grade 35% hydrogen peroxide, which is essentially the same thing as ozone, but supposedly more gentle. This is not something I'm willing to try without my doctor's support, especially based on what 3% hydrogen peroxide did to my mouth (check out my black hairy tongue post.)

The next option that was made aware of is the Shoemaker Protocol. I had several people tell me it's the ONLY option for treating mold, and all the mold support groups I've looked into treat this protocol like the Holy Bible of mold toxicity. It's so popular you'd think it has a high success rate, but I keep digging and digging through the internet and can't actually find much about the success rate, just people claiming to feel better and people claiming they can't tolerate the protocol. The protocol seems to be a mixed bag. From what I'm reading, there are plenty of people who do not do well on this protocol specifically because of the main prescription medication: Cholestyramine (CSM). It's a cholesterol drug. This raises red flags for me. First and foremost, my cholesterol should not be lowered! Secondly, I don't tolerate medication well - my body readily rejects most medications I've tried. Thirdly, negative reviews of this drug for mold toxicity are very negative. It causes severe constipation, and you must take it with a laxative, causing a great deal of distress for many patients. It also absorbs nutrition from your food and supplements, so you must be really careful about how to take the drug so that you don't malnourish and dehydrate yourself. I hope you can understand my hesitancy to consider this protocol! I understand that when it works for someone it works very well in that it makes them feel better. But what I don't understand is why this prescription drug could possibly be more effective than natural binders like Zeolite, Activated Charcoal, or clay?  Dr. Shoemaker claims that they don't bind to the same toxins, but why not? I plan to do a lot more reading up on this protocol since it's pushed so hard by mold patients, but I think I need to remain skeptical. Listen to or read this really wonderful interview on this protocol by Dr. Shoemaker himself.

The other option I was made aware of is a protocol by Dr. Nick Gonzalez, may he R.I.P., as outlined in Suzanne Sommer's book Tox-Sick. (I will write a separate post on this book once I finish reading it, but so far I highly recommend it.) He advocates for regular coffee enemas and far infrared sauna treatments in addition to taking food-grade bentonite clay daily. He claims that the clay's magnetic charge and honeycomb structure makes it an excellent binder to absorb mold and carry it out of the body. I'm intrigued by this, especially since I know how much better I feel when I take activated charcoal regularly. I also found this study about the effectiveness of clay on aflatoxins in humans. I see problems with this plan, though: dehydration and heavy metal toxicity. Apparently there is less lead in the clay than in some nuts and vegetables, and apparently it's not a bioavailable lead. I'm linking to Wellness Mama on this one simply because I'm having a very difficult time finding actual studies on the risks of the heavy metals in clay - even the FDA approves bentonite clay as a safe food additive. Maybe my hesitation about food grade clay isn't well founded afterall? I have been using bentonite clay on my skin and as a toothpaste for a couple of years now and absolutely love it. As for the coffee enemas, I'm interesting in trying. I get colonic irrigations a few times a year at my doctor's clinic and they are exceptionally helpful! Enemas won't be nearly as good, but I'm curious because I can do them at home. I already use my far infrared sauna many times a week at home (I haven't written a post on this - what's wrong with me!?)

I'm glad my naturopathic doctor had another option for me. He put me on a homeopathic nasal spray with oils designed to kill mold in my sinuses. This is not a full solution, but we just want to see what happens. Mold loves the sinuses because they're a dark humid place, so starting by killing the mold in my sinuses makes sense. The spray is also designed to desensitize me to mold homeopathically.  It's a bit intimidating spraying trace amounts of black mold into my sinuses, but I'm not foreign to the concept and have had good results with this type of treatment in the past. For now, I'm content to address my mold issue with this nasal spray while I work on making my house as mold-free as possible. Ideally I'd be able to do a hyperbaric chamber regularly too, but at least I can stick with my diet and my sauna to continue to kill off and sweat out the mold in my body. I might even consider the food grade bentonite clay, after a lot more research and talking about it with my doctor. I need to go slowly, and I like that this is a very gentle start to killing off the mold in my body.

How I Respond to MCS: Before, During, and After.

I have learned that I need to use my sauna and neti pot after ever shift at work. If I do not, I have agitated sleep full of angry and annoying dreams and I wake up feeling exhausted. I have a headache and some pain while at work, but the real reaction tends to be delayed (like many reactions for me) and hits me hours later. Yesterday I did go for a hike through the trees along the river, a little ways outside of town and away from any car exhaust. I was hoping the fresh crisp air would help as much as the sauna, but it didn't. It just left me feeling very exhausted. I'm still very fatigued this morning.

I attended my university's Jazz Band, Vocal Jazz, and Steel Drum Band concert a few days ago because I was craving to do something "normal" with my husband and this sounded like fun. When my husband and I were students, he was in both Jazz Band and Steel Drum band, so it was nice to go to reminisce. It was located at the main concert call downtown, where the local symphony performs. I knew that many ladies wear heavy perfume at those concerts, as they're dressy affairs, and I know that cloth seating tends to absorb perfume. This was not a dressy event, mostly college students in the audience, so I thought there was a chance I could get away with going. Unfortunately, I had heart palpitations the entire time. I could feel something inside my ear twitching every so often too. I wore my ionizer necklace during the concert. It helped some, and I know this because I had to shut it off for the last 15 because the battery was running low, causing it to hum loudly. I developed a headache and some eye pain after I shut it off. Because we got home late, I did not use my sauna. I just took an extra glutathione and NAC, which helped a little. I had agitated sleep that night too. Was it worth going? I'm undecided. It was honestly so nice to feel "normal" and get out of the house with my husband that I think this feeling overshadowed the MCS reactions.

MCS is so frustrating. It hinders my ability to be me - I can't go places I want, I can't do things I want, and I can't spend time with people I can't trust to be safe. My reactions are not as severe as many people with MCS. I survived the concert hall with lots of discomfort, whereas others would be sent to the ER by it. It doesn't mean I'm not hurting, and I don't want to go to places or do things that cause pain.



This is what I've learned to do before, during, and after exposures in order to recover the fastest:

1. Take glutathione and NAC throughout the day every day. I take 1 of each with breakfast, lunch, and dinner. I take my Naturopathic doctor's brand, but there are other brands on the market. I can't speak to the quality of these brands, sorry.

2. Take extra glutathione and NAC right before going somewhere risky, like church.

3. Wearing a mask (I use Vog Mask) helps some, but some things that cause reactions still bother my eyes, ears, and skin. They stick to my clothes, hair, and skin. It's best to just avoid. There's no armor that works. But if I need to go somewhere risky, such as on an airplane, wearing a mask does help some. (See my review of my Vog Mask here.)

4. Eat protein and fat every 2 hours. I get hypoglycemic, and I've noticed that keeping my blood sugar as stable as possible helps me avoid feeling faint and overly dizzy during a reaction. I used to get the feeling of very low blood sugar, blood pressure, and faintness fairly often, definitely made a lot worse by reactions, but I haven't experienced this much in the last year.

5. I wash my clothes very often. If I go to a risky place, like church or work, I put the clothes I wore in that place in the laundry as soon as possible. Toxins tend to stick to clothes and I don't want to keep wearing what I was reacting to. (I don't know that I have to say this, but make sure you're using natural plant-based detergent that doesn't cause more clothing toxicity. I really like Biokleen's Free & Clear line, both the powder and liquid.)

6. Getting directly in the shower helps, but I recover much faster and tend to suffer less bad reactions when I use my far infrared sauna often. The more often I use it, the more I can tolerate toxin exposure. I've learned to get in the sauna after each shift at work. I sit in it and sweat for 30-40 minutes, pushing out toxins in my skin and increasing my circulation so my body can clean it self out better, then get right into the shower. I bought a $200 portable sauna on Amazon about 2 years ago. It's made in China, and some people with MCS are likely to react to it. A real, full-sized, wooden sauna is always better (they work better too,) but I have no idea which one on the market is best, safe, most effective, etc - the one I linked to is just an example. But I have no problems with it at this point (when I first bought it I probably reacting constantly and didn't understand that MCS was the problem, so I don't remember how it made me feel when it was new - it was when I first started seeing my doctor who's done so much good for me.)

7. Sometimes I opt to take a hot bath instead. I can add salt, clay, ginger, and other good stuff to detox when I take a hot bath (see previous post for more details on my favorite detox baths.) I make sure the water is as hot as I can stand it so that I sweat a lot. I then take a full shower after my bath.

8. Neti Pot. Seriously: Neti Pot. (The ceramic kind - NOT plastic!) I know many of you that I've talked to are afraid of them. Normally I would accept this and help you find a different solution, but in this case, I'm going to keep pushing it. Use a Neit Pot! They do not hurt, you can breath while using it, and it's a very low cost solution for something that helps so incredibly much! I always use reverse osmosis filtered water that's been slightly warmed on the stove. Do not use tap water - you do not want to pour all sorts of contaminates through your nose, such as live bacteria or organisms that didn't get cleaned out at the water processing plant. Pushing the water through my nasal passages simply helps clean out a lot of crap that I've breathed in. Furthermore, the salt that I add to the water stays in the nasal passages for about 30 minutes afterwords. It soaks up mucus and clumps it up so that I can spit or blow it out. Mucus is what traps toxins, so getting rid of the mucus is very important to detoxing. Yes, the water only flows through the nasal passages, but the salt absorbs mucus from all of the sinuses, even my ears. My Neti Pot is a staple for me!

9. Rest. If I don't give my body rest so that it can recover, repair, and recuperate, my body doesn't let me push forward. I can't simply go back to work the next day. Reactions take a lot of energy, energy that I'm short on anyway (chronic fatigue!) I MUST let my body rest for as long as it takes if I plan to keep moving forward in life. Sometimes I only need half a day. Sometimes I need a few days of doing nothing. I have to listen to my body and do as it says.

10. I have to keep my home as safe as possible at all times. I never bring anything into my living space that's risky for me. I don't invite people over. I use my own cloth shopping bags and wash them regularly so that I'm not bringing home the store's bags that are infused with the smell of the store. I vacuum, sweep, mop, and clean regularly. I run an air purifier regularly. I dust regularly. This is not to say my house looks organized: it's not. I don't spend energy picking up after myself, it's poorly decorated, and sometimes looks like I just don't care. I just focus on keeping the home environment safe enough. I only have so much energy to spend.

11. I do have many houseplants. Mold and fungus has been an occasional problem with them, but I stay proactive with my plants. I keep a close watch for the mold and fungus and clean it out the moment I spot any. Otherwise, they're great. Certain houseplants clean the air. Check out this article for more details.

12. I practice a lot of escapism. Instead of giving in to the feelings of anger, agitation, pain, discomfort, anxiety, depression, and other unpleasantness I experience during reactions and periods of poor health, I try to do something that allows me to mentally escape. I do something really risky: I bring my phone into the bath with me so I can read or watch videos while bathing. I watch Netflix while I use the sauna. The reason for this is that if I don't have a distraction, my thoughts get really anxious and dark, and I feel a lot worse and more fatigued. Negative thoughts take a lot of energy, and often times I don't have enough power over the negative mental feeling. So I distract myself with something until the reaction calms down. I spend a lot of time playing video games, reading easy books and graphic novels, and watching my favorite series. These things occupy my mind, which is a huge blessing.

Note about 12: Lots of people have argued that I should be practicing mindfulness, guided meditation, or prayer instead of using distractions. I'm sorry. These things simply do not work for me. At all. I don't have the energy to control my thoughts - these things take a lot more work and stamina than I have to give. If these things work for you, yes, you're probably going to recover faster employing them. They allow for a deeper rest and a better calm. They train us to have better control over our mental and spiritual states. These things are important! But I'm sorry, they're not enough to combat my anxiety and reaction agitation. I tried praying the rosary while in the sauna during a really nasty reaction once. I was shaking with anxiety and desperate to calm down. The rosary should be very calming, reflective, and meditative - it simply called attention to all my problems that I wanted to share with God. It caused me to think about how hard life is, how much suffering we go through, and how I just wanted to be dead to end the suffering. Prayer is a very powerful thing. I strongly believe in God and I strongly believe in the importance of prayer. But I've learned that my prayer isn't effective during my deep anxiety times - it makes me feel worse. I pray when I'm feeling strong so that I can actually calm my mind enough to listen to God. It's a big reason why I'm struggling so much with church - church causes me to react, and I can't focus or be worshipful when I'm reacting.

13: I take care of my health to the best of my ability. I'm taking a ton of supplements , eating a very strict diet, exercising the best I can, practicing avoidance to the best of my ability, avoiding as much stress as possible, etc. I'm doing what I can to heal my chronic illnesses, weak organs, etc. My issues are my own. You need to learn your body and address your body's needs. The stronger our body's health, the better it can tolerate environmental toxins... or at least recover from reactions.

14. I try to spend plenty of time in nature, in the trees or by the sea, away from car exhaust, cigarette smoke, toxic people, city pollution... you get the idea. Nature is the ultimate air purifier. It's the ultimate stress reliever. It also helps me adjust to the changing seasons better. The more time I spend outside, the less traumatic seasonal changes are for me (despite that winter is horrible anyway.)

(Isn't it just calming thinking about being in nature?)

15. Therapies help. I can't say enough about how much chiropractic, acupuncture, and massage helps me. All of these help the body work optimally, all of which will relieve body tension, stress, and toxin build up.

16. I do use a Himalayan Salt Lamp. This is one of my favorite items to sell at the store I work at. It is not enough on its own to help with a reaction, but it does serve an important role for me. The salt releases negative ions into the air to counter the positive ions. Positive ions are harsh on our bodies: electricity/ lightning, environmental toxins, etc. The negative ions clear the air so our bodies don't have to fight the environment as much. They are very calming. My favorite time to use it is right before bed. I read to the light of it. I feel less agitated around it, which is really important in the process of falling asleep.

The ionizer necklace I use works very similarly: it puts out negative ions near my body to help me breathe a little better. It does help some.

(Note: There's a lot of New Age spirituality tied to them, and this has turned some of my customers off from buying one. I've never used it to call spirits, work magic, fortune telling, etc - I don't believe in this stuff, and the lamp has never drawn me in to any type of witch craft. Keep in mind that you can tie spirituality into any object, such as gemstones and minerals. I don't believe in the spiritual properties of gemstones, but they're really pretty and I wear them. Salt is a natural product of the earth, it was around long before humans even existed.)



I encourage you to share with me what helps you! Leave comments on this blog so others can read them too.