Fitness and Conditioning

I wish I could go to a gym and work out for an hour. I often day dream about lifting weights like I used to. I loved the feeling of being sore and tight in my muscles, feeling a natural tiredness from actually using my body well. I loved seeing muscles forming on my arms and legs. I loved shaping my body by staying toned. It felt really good. Now when I look at women in great shape it's a little hard for me. I'm really happy for them, but it makes me want to join them at the gym and get back into shape.

I really do my best to work out, but it's really challenging with chronic illness, and often ineffective or harmful. Let me break this down:

- Fatigue. I often have the mental willpower to sit at the machine and start pumping weights, so I'll go for it. And then I can't even finish a set before I run out of energy. This isn't a de-conditioning issue. If it was then my diet, supplements, and regular practice with the weights would mean I could do more every time. If it's de-conditioning, then I can actually improve. No, this is a problem of my body deflating with every pump of the weights until I have nothing left to stand up with. Every time I try I can do a different amount of weight lifting until the fatigue wins. No, it's not a de-conditioning issue, because if it was, I would be able to consistently do more with practice.

- Pain. I don't mean the normal wear and tear on muscles from working out. You know, the "it hurts so good!" pain that I love to feel. I mean joints on fire. I mean feeling ripping in my ovary from pushing or stretching. I mean chest pain from my HR going really high after just a minute of working hard. I mean throbbing in my head from blood not knowing how to circulate correctly while I'm working out. I mean an abnormal constriction in my neck and shoulder muscles that makes them super tight and in pain for a day or two after, like a cramp that doesn't want to be massaged out.

- Post Exertional Malaise. This is the fatigue that is the result of spending energy. For a healthy person, they might experience it for an hour or two after. They can still get stuff done if they have to, but they'll be tired and lose some motivation and focus. Their body needs to recover and they'll be fine. In my case, and the case of many people with various chronic illnesses, it's much worse. When I spend the limit of my energy or more than I have, it might take a day or two of recovery time to get back to my normal fatigued self. This means a lot more time in bed with brain fog, jello for muscles, disrupted metabolism and bathroom needs, mood issues, high heart rate with a sore achy chest, inflammation and swelling, and an inability to properly care for myself. When this is a normal response from my body, how am I supposed to work out regularly and have the ability to get stuff done? Like, having energy left to spend at my job? I have to pick and choose where my energy goes, as if my energy is money in my bank and the balance is always low.


So I do my best. What can I do?

- Walks. I feel the best results from going on walks, but the distance I can go depends greatly on how I'm feeling. 1 mile is my typical cut off point, but I have been able to go 2 miles on good days. Walking is the least taxing and most gentle way for me to move. I can move longer before my body gives out. The problem is that I live in North Dakota, so I can't be outside for half the year without a lot of weather gear on. Treadmill? I'm not getting a gym membership just to walk on the treadmill near stinky perfume-ridden people. I'm so reactive to perfume that I'll have to leave from feeling sick before I get much benefit from the gym. I've already gone this route with a YMCA membership. I also spend too much energy just getting to the gym. I'd rather just buy a treadmill for at home, but they're expensive!

- Stretching. I was in ballet and gymnastics for my entire childhood. I learned great stretches that I've continued to do my whole life. Stretching actually drains my energy rapidly. I can feel my battery depleting as I do it. But I feel like it gives me the most benefits with the least work.

- Doing short quick sets with lighter weights. I have a weight machine at home that I use, and if I do a little bit of everything over 3 to 4 minutes I can manage. It's not enough to build muscle or tone, but it allows me to use my muscles before triggering too many problems. I can feel my arms tightening up, but I can't find the energy to do enough to make them burn from building muscle.

- Tai Chi... to a certain point. I can't keep my arms lifted up long enough to stay in the poses. I like it because it works me out a lot with little effort, and it keeps me calm in the process. It isn't adrenaline-inducing. But it's physically taxing and I normally cannot make it through a sesson.

- Working on my feet for 4 hour shifts, 3 days a week. To me, going to work is my work out. I spend 3/4ths (or more) of my weekly energy at my job. I'm on my feet walking around, carrying stuff, cleaning, talking, squatting down and standing up, and just plain moving. Work leaves me feeling worn out and exhausted. I have had many many shifts where my heart physically hurts by the end. I almost always have post exertional malaise from shifts, so I'm often scheduled with a day or two between my shifts.


I want to make a special point to say that Yoga is not helpful. Why? I have POTS. Positional changes can be hard for me. Every time I try Yoga I get super dizzy, sometimes it gives me vertigo. It doesn't keep me stable while using my body.


The problem is that I still spend the majority of my time sitting or laying on my butt. It's not by choice, but by necessity. So I have a big flabby butt. The rest of my body doesn't reveal my lack of exercise that much, but my butt screams "I sit and lay too much!" I don't like it.

And that leads me to my next related issue: Clothes.

Notice how fitness and yoga clothes are the norm for women these days? Even jeans are skinny to show off our figures. Now, think of yourself as someone with chemical sensitivities that is reactive to synthetic fabrics, so you can only wear natural fibers and dyes without issues. Okay, now I want you to go shopping. Look for organic and natural clothing companies: Tasc Performance, Pact, Adventura, Synergy Organic, Toad and Co, Fisher's Finery, PrAna, Ten Tree, Groceries Apparel, Green Apple, LA Relaxed, etc. Find me some pants without added polyester that won't showcase how big my butt is. Please. And leave it in the comments when you find a pair. ;) Organic companies tend to make clothes for people who love fitness and have good bodies. Yes, they'll make sizes up to XL, but their pants (aka leggings) still tend to be tight. Almost all of these brands tailor their pants for women who do not have a curvy butt and wider hips. Maybe the problem is that I'm a size 8-10, I'm not overweight.

So I buy the pants and wear them, but I'm not happy about showing off just how out-of-shape my butt really is. I'd rather that my pants had enough thickness and structure to flatter my butt. But that's too much to ask, apparently. Carve Designs made a pair of jeans that fits my curvy figure and they're awesome, but I don't like the short inseam with the frizzy cut off bottoms. If they were full length pants I would hem them, but they're 29" - the perfect inseam length for me, so there's no room to hem.



I'm typing this post thinking about how badly I want to tone up. My mental energy wants me to go work out. My body is dizzy, feels like a brick, is sweating just sitting still in the cool air, with weak jello muscles, freezing icy cold toes, and keeps forgetting to breathe because it wants to stay still. I worked yesterday, and it was a physically demanding shift. Post exertional malaise.

Maine and Acadia National Park (Doctor Visit/ Vacation)

Last week I was halfway across the country again to visit my doctor. At this point I have nothing I want to say about lab results or my examination, so this post won't be about that. I made some enlightening observations and have some stories to share. 

I spent 2 full 8 hour days at his clinic doing therapies, such as hyperbaric oxygen chamber, sauna, IVs, acupuncture, and more. The winning therapy for me this visit was the colonic irrigation. I knew my gut wasn't working well when I arrived. I didn't have a concept of just how stuffed it turned out to be. Before I give you too much information, I'll stop there. 2 colonics from 2 awesome nurses later I noticed major symptom relief. My acne (which was starting to make me look like a teenager) totally cleared up. My vision was less fuzzy again. My hiatial hernia feels like it's gone. The pressure in my upper back and shoulders is gone. I'm not burping or feeling mild heartburn anymore. Best of all? My mood! Despite raging PMS, I felt peace. This tranquility and calm took over, and I felt like I didn't have to force myself to be kind anymore. My last colonic was 9 days ago. Today I started my period (hellish pain), but guess what? The bloat went away. I dropped 5 pounds (overnight, seriously) and for the first time in who knows how long my stomach looks flat. I feel light and thin.

I took this after just getting up from laying in bed from last night until 2 pm in some pretty nasty endometriosis pain (and with a sedating pain killing tincture still flowing through me)... so ignore my tired face. It's not the best angle to see my stomach, and I'm not sure I have a photo so you can compare, but believe me. My stomach isn't bulging like it was during PMS and pre-colonic. I normally can't wear this tank (medium Pact racerback) because my stomach is too bloated for it, but it fits well now!



You might be wondering why I haven't been doing gut cleanses here at home. I actually was. I take DGL regularly, and use aloe vera with slippery elm as needed. I also take vitamin C and magnesium citrate. In fact, the week before I got on the plane, my local acupuncturist had me on an herb blend with a strong laxative effect (and she didn't tell me.) Let's just say it was working and I was in the bathroom often. It just doesn't do the same thing as a colonic. All that water from the other end does wonders.

My other therapies were very helpful too. I love glutathione and vitamin C IVs so much. They wake up a part of me that I forget exists. I don't know how to explain it, but I feel more complete for a while after them. 

This was one of my German footbaths. This is not that silly type of detox footbath that turns colors based on what the water pulls out from your feet (hint: the water in those turns colors even if your feet are not in it!) This is a seaweed blend and it feels amazing on my purple freezing feet. 

Normally my mom travels with me to see my doctor. This time my husband insisted on taking me so he could make a vacation out of it. As much as I love to explore, I was honestly really nervous to vacation. I was unsure that I'd have the strength and energy, and I knew I'd end up holding him back from doing as much as he wanted to. He doesn't like to stay in one place long, he likes to see as much as possible and pack the day full. I used to be the same before I got sick. Now I like the idea of finding a pretty park in a new place and relaxing there for a while.

My doctor is in Portsmouth, New Hampshire (Human Nature Natural Health.) The first evening we got to relax on the deck of our Airbnb (I'll blog about finding Airbnb's that are safe later.) We had the most beautiful sunset to watch. That last evening we went to a Jazz Club downtown - not the sort of thing I'd normally do after 2 full days of therapies that leave me very calm, peaceful, and just wanting rest to soak it in. Also not the type of place my MCS normally allows me to tolerate. I was able to relax in my chair and enjoy it with a locally grown salad full of veggies I could actually eat. It was actually a fairly safe place for me to be that evening, surprisingly!




After 2 days there, we drove up to Portland, Maine for the day. Neither of us really liked Portland all that well. Everywhere we went people were either smoking cigarettes or marijuana. The downtown stone streets smelled like smoke, which was really disappointing. It was upscale swanky shopping for things that really were not that interesting. I found a store that said "organic apparel" on its sign, so I went in. No joke, all they sold were glass blown bongs and female sex toys. (Glass sex toys? Really?) No clothing anywhere. I went into Irish Crystal store - I had to know what Irish crystals were. There were no crystals, just a ton of very dusty old merchandise that I think was supposed to have been imported.

Finding dinner in Portland was maddeningly difficult. There are two Greek places in Portsmouth where I can get lamb kabobs that I do really well with. Portland? There are a crazy number of restaurants. So many of them only serve less than 10 dishes. Most of them are so unique, like culinary art dishes, that I couldn't eat any of them. I couldn't just get a steak because they were all marinated. We settled on a restaurant on a boat and I ordered haddock with asparagus. They did listen to my dietary needs and allergies, they did make it just as I asked for. But I found myself with a mild allergic reaction (tingling lips and a swollen throat.) Probably cross contamination.

The next day we drove up the coast all the way to Surry, ME (just north of Acadia National Park.) It was a full day of driving and stopping at interesting places along the way. I was so drained, so sitting in a car all day just looking at stuff was helpful. We got out at a few interesting places. 

Rockport, ME

A big bridge with an observatory on top of one of the pillars.

We arrived at our Airbnb in Surry that evening and found dinner at place in Ellsworth that worked out well for me. A smaller town, but much more simple menus! Notice how finding food that doesn't hurt me is a theme on this trip? I was able to cook every breakfast at our "homes," thankfully. We went into a couple of Whole Foods and stocked up on easy grass-fed hamburgers and veggies so I could cook breakfast. I also brought my own stainless steel pan. I know that sounds crazy, but I couldn't risk getting stuck with Teflon pans.

Surry, ME Airbnb - this place was great! Highly recommend for sensitive people like myself!

<sub><sup>We spent the last two days in Acadia National Park. Now this is where the trip gets interesting for me in terms of health. Obviously I wasn't going to do as well in cities with lots of people, pollution, and poor food options. I seem to get along with National Parks very very well!

The first day was an overcast costal misty kind of day, where it wasn't actually raining, but the mist got everything wet. I love those kind of days. We spent the first part of the day in Bar Harbor, which was everything I was hoping Portland was going to be and wasn't. The air was fresh, the streets were filled with truly interesting shops that were not filled with fragrance, it had fantastic organic and local food options, and such a pretty view. My husband doesn't like shopping, but he was enjoying the stores and we had fun. There was a hemp textile store (my favorite), a fair trade shop, a bookstore with a huge discount section of awesome books (I can't flip thorough many of them due to the ink, but my husband scored big time), an old fashioned clock making factory shop, gem and mineral stores, and more. I loved that I was able to go into many of these places with little issue. That's so rare for me. There were a few stores that I walked in and walked right out due to incense or fragrance, but overall most of the shops seemed to understand that people don't want to smell anything.

In the afternoon we drove the main loop in Acadia National Park. I loved the overcast mood over the park from the mist. It brought out all sorts of tones and colors in the trees and ocean that were not there when the sun was out that evening and the next day. We had the park mostly to ourselves. It was a Friday before Memorial Day weekend, so it wasn't busy at all. Perfection.</sup></sub> 

My hubby and I after arriving in the park

On top of Cadillac Mountain. I took this while in the middle of a cloud that was blowing across the peak. It was cold, but stunningly beautiful. 

After the cloud blew through I snapped this photo of the view. Breathtaking! 

I climbed over some of the rocky cliffs to take lots of photos like this

Me enjoying climbing close to the edge

The sun came out, so I hiked down these rocky cliffs and fond a cozy spot to lay in the sun. My hubby snapped the photo. He knew this was how I wanted to spend vacation: laying in the sun in a beautiful place!

<sub><sup>The next day we spent the majority of the day in the park. It was a very different day. The sun was out the whole day, it was warm... and the tourists started to show up. By the later afternoon the park was full and it was hard to find places to park at the attractions. Thankfully by that point we had seen most of the park without people in the way. 
I was feeling well enough so I picked out a trail to hike. Yes, I wanted to hike! I wouldn't say I had energy, but I felt strong enough. I felt in control. I felt capable. It took us 2 hours to hike the trail, and there was no warning about the difficulty level. The trail started easy, just walking on a path. Then, a ways into it, turned into slightly advanced trails on rocks and narrow wooden bridges. Then there were some vertical areas. As in, the path was no longer horizontal. We had to rock climb down maybe 20 to 30 feet in a few places. I was so not prepared for that.

But guess what? My heart rate was fine. Stayed in the 90's and low 100's. It was a challenging trail that left me sore, but my body enjoyed it. It wasn't giving me any trouble. The same thing happened in Glacier National Park. When I walk around easy Bismarck trails here at home my HR tends to be in the 120's up to 170's. I go to a National Park and hike advanced trails and my HR is actually lower, my breathing is great, I'm not dizzy, and I feel strong. What's the difference? Well, a lot. It goes to show I'm not out of shape. I could be in much better shape, but I don't have a deconditioning problem. In these parks I get dense fresh clean air. No dryer sheets, car exhaust, cigarette smoke, smelly deodorant on other people, pesticides, mosquito fogging... it's just pure clean fresh air. There's also no cell service, so no EMFs. This makes for a profoundly different environment. 

The problem is that I didn't feel energetic, only capable. I did end up hitting a brick wall near the end of the trail. I reached my limit of what my body could handle. I felt my mood suddenly drop, then my vision started to stagger and shake a bit, then my whole body started to shake, then I couldn't prevent involuntary crying, and then I felt the need to faint. But I didn't. Because my body resists fainting. It really likes to make me suffer through all the pre-fainting feelings until I sit or lay down. My heart hurt so badly. It was banging against my rib cage. I had air hunger. Everything was swaying. I felt like I was walking on a boat, but it was land. I ate some jerky, but it didn't seem to a be a blood sugar issue. Thankfully my hubby helped me get to the car and I was able to recover while he drove. When we got to the car there was an ambulance and firetruck at the trail head... I was worried about whoever they were there for, but also thinking to myself that I was so happy to know they were there if I had needed them. 
So I had a POTS episode. But otherwise I survived a 2 hour hike on a drop-dead gorgeous coastal cliff trail!</sup></sub> 

I choose the Great Head Trail

I wanted to do the tree, but I didn't want my dirty foot on my pants, so I did an awkward incomplete version. Hahaha

I enjoyed climbing all over these cliff edges. That's a long way down!

This was the view of Sand Beach from the peak of the trail, a very rare natural beach on the Maine Coast

I found another great place for a nap on the cliff edge!

I forgot how to pose in photos, so I just did silly things

Yes, this park was therapy. My doctor's clinic was necessary therapy, but so was this park.

Even though I have chronic fatigue and it's difficult for me to do much, spending the energy I do have in places that revitalizes me is really important. I'm recovered just enough that I'm able to travel for medical reasons, and able to do simple things on vacation if I'm driven around. I can't do the driving myself anymore. It's very overstimulating and overwhelming. New places used to be invigorating to me. But as long as I don't over do it and I have the right person taking me on the trip, every once in a while a trip like this really helps. Of course I have to factor in that I had just had 2 days of therapies from my doctor! It was like taking a pill that gave me quality of life and stimulation just long enough to actually go on a vacation. I highly doubt I could manage a trip to a city like New York - I don't have the energy for that. I would collapse. But driving around and walking as I'm able to makes for a healthy vacation.

The next day we flew home, but we started the day in Bangor, ME. Any Stephen King Fans? We had a bit of time to see a few landmarks, but here are 2. The statue from IT and Stephen King's house!



I could tell you a bunch of stories, like homeless people standing at our car door and making it impossible to get out, sitting next to a Canadian ER nurse on the plane, talking to a cancer patient at my doctor's clinic... but I don't have the energy. I wanted to share these highlights instead. 

Dear Organic Clothing Brands,

Coupon codes
Satva: FRIEND-W5NKDQS (Good until May 15th, 2019)
Pact: http://fbuy.me/iAufr



Dear organic and natural clothing companies,

First of all, recycled polyester is not organic or natural. It's not even sustainable. Plastic sustains until the end of time, but it breaks down to forms we can't use anymore, washes out of our clothes as micro plastics and gets into the water, then ends up in the fish we eat, so then it ends up in us and causes estrogen hormone disruption. Please stop treating recycled polyester as an organic fabric addition - it isn't!

Should I even get into the problem how many us with sensitivities cannot tolerate polyester on our skin? The reason I wear organic is to get away from the added chemicals and synthetic fabrics that my skin doesn't like. Polyester gives me horrendously awful body odor with a rash. It's so bad I gag myself on the body odor. My skin gets super tender and uncomfortable to touch, and then slimy too. My skin does its best to get polyester away from it.

Pact, I'm looking at you more than any other brand I'm frustrated with, mostly because I've loved you for years. You used to never use polyester at all, now you have way too many options with polyester. Most of your men's line contains polyester. Why? Why would you exclude men from having 100% organic cotton options like you do in your women's line? There are natural textile alternatives you should be using, especially considering your slogan, "Make organic an unnecessary adjective." Polyester doesn't fit that slogan at all.

Second, stop assuming all of your customers do yoga or are athletic. Some of us don't have the bodies we want for whatever perfectly valid and politically correct reason, and we don't really want to show off our butts and stomachs in overly fitted clothes. I have endometriosis, which causes me to bloat badly. I'd rather not call attention to my bloat with tight or overly fitted clothes. Some brands have gone the opposite extreme of making oversized baggy options. I don't want to look like a potato sack either! I have no problem with you offering plenty of athletic skin tight options for those with the bodies or desire to wear it, but please remember the average person wants their clothes to flatter them, not show off their flaws. Would it be possible to buy a pair of sweat pants with a bootcut and a thick enough and just loose enough fabric that doesn't show off every dimple in the butt? A pair of pants without any of that recycled polyester crap? Why not replace it with hemp or tencel or bamboo? Because I've been actively looking for that pair of pants for years. Maggie's has done the best job so far with this pant (due to the thickness, and can be sized up for a more relaxed and just as secure fit), but the length is too long and the hem is very difficult redo myself.

Third, I'm all for being fashionable... but why does that have to mean making so many options that show cleavage? Do you know how hard it is to find an organic cotton short sleeve tunic/ shirt tail cut that actually covers my butt (from the tight yoga pants your forced me to buy because there are not other options) without a super low cut neck line? Well you should know since you make the clothes! Maybe the super low necklines don't matter so much for the A and B cup ladies who can find an organic fabric sports bra to fit them, like on your models. But for the rest of us with average or large busts... could we please have modesty?

Let me take this point even further. We all have different bodies, but every band seems to be catering to the same body type. Most tunic center back lengths are around 27". (I know because I've spent hours researching the length on every organic tunic I can find.) I have a long torso and short legs, so I need a 30" center back length for the tunic to actually look like a tunic on me. 31" would be awesome too. I would wear tunics/ high-low hems if only I could find one that's long enough!

Speaking of men's issues, please stop with this snug shoulder width problem. If XL fits everywhere else just right, why are the shoulders always too tight? Because of the "modern fit" and "slim fit" issue. I don't need it to be slim in the shoulders! It's nice not have to excess fabric hanging off in the back, but why does that automatically mean as tight as possible in the shoulders?

Fourth, bras. Seriously, why in the world hasn't any brand filled this need!? I'm ready to fundraise money so I can start making brass myself. MANY women are 29 DD+ in size. I'm a 34DDD. It's impossible to find any sports bra made from natural fibers that actually fits us larger busted women. I've settled on this t-shirt Natori bra made from modal. There is no polyester that gives me skin irritation, and it fits well. But it's seriously the ONLY bra I've been able to find that works for me... and it's not a natural or organic fiber bra. Modal is borderline natural and my skin tolerates it, so good enough. But what about sports bras? Nope. Can't find any options. There are brands making great options if you're humble-size chested. Tasc, Boody, and Pact make great bras without polyester added. But none of them are designed for anyone over a D cup. Please, for the love of comfort and dignity, one of you brands cater to the rest of us ladies!

Fifth, stop making most of your pants as short ankle pants or long 32" inseams. In fact, can we move towards the way men's pants are sized (well, in conventional fabric pants)? I would love to be able to choose my waste size and inseam. If I'm going to spend $80 on a pair of pants, I shouldn't have to hem it or limit what shoes and socks I wear with it due to being short. Women come in all shapes and sizes, and the S, M, L, XL sizes with no choice of inseam is awful. Even the petite, regular, and long choices have too big of a difference between them! I was looking at pants that came in 28", 31", and 34". Um... too short and too long! Where is my 29.5 to 30" option?

My husband has a couple fit issues too. He has short legs, and needs a 29" inseam. 30" is too long and requires hemming or rolling up, but there are no organic pant options in a 29" inseam! In fact, men's organic pants have a *major* issue with not actually offering different inseam lengths. Most brands only offer their pants in 32" inseam lengths... way too long!

Lastly, color choices and patterns... are rare! If I wanted all of my shirts, pants, and dresses to be solid black then I'd be happy. Black looks bad on me. My skin is pale and my hair is brown - black washes me out. I want color! I want green, purple, blue, salmon, magenta, dark orange, violet... and I want them in prints or patterns! Almost all of the tops I own are solid colors because that's all that was offered, and they're mostly blue, because blue is the main color being offered (that isn't black or white.) Sigh. Try looking for a green 100% organic cotton t-shirt. Last I checked, Pact was the only brand offering it - and they didn't offer it for a long time. Try finding a green 100% organic 3/4th sleeve high-low/ shirt tail hem with a modest boat neck. It doesn't exist anywhere, I looked. All I'm asking for are options, please. Stop trying to be so basic all the time.



I want to commend some brands that are getting it right. Sometimes. Or mostly. Or good enough. Better than everyone else, at least?

Toad and Co's Earthworks Pants. Organic cotton with tencel, under $100 SRP, and you can find it at clearance prices. Tencel (from the eucalyptus tree) does what polyester does: prevents the wrinkles and helps with drape. Without destroying our water or hormones. Awesome! I know there have been some concern about the chemicals required to turn it into a textile, but I'm sensitive and have had no issues with the tencel in this brand. They have a bit of issue with size consistency. I own three of these pants and they fit differently. One is a skinny ankle pant, the other is full length and straight cut, and the other is full length and practically boot cut. I ordered the exact same style each time, I didn't go for the skinny or wide leg options. Hmm.

Toad and Co is also the best company for finding organic options with prints and designs. They do offer a lot of synthetic options too, so you have to be careful and read the fabric composition. They tend to be a little too expensive, but their clothes often end up on liquidation sites likes Sierra Trading Post and Camp Saver. Amazon sells many of their clothes, but not all, and often not at the lowest clearance price.

Pact Organic (in general). They have gone through too many big changes over the years, but I can usually (not always) rely on them for affordable enough well made basics. They make clothes the right way: small batches. When they come out with a new style, you better buy it quickly if you like it. They do offer amazing clearance sales, but that one shirt you loved may sell out before it reaches clearance. I normally just shop their sales, but I have occasionally splurged on a full price item just to make sure I get it.

They have done a really good job with the cut and fit of their clothes, and I'm never guessing about which size to order. Their underwear is all I wear - it's the best! It fits my wide hip size, doesn't ride up, doesn't sag, doesn't curl, doesn't wear out quickly... it's just perfect. Ironically, they offer lots of prints and patterns for underwear, but no longer do on their t-shirts. (Pact, if you read this, I miss your prints on your outerwear clothes!)

Gramicci's hemp and cotton mix tops. Simply awesome. The fabric is very lightweight and breathable, but not sheer or flimsy. It holds shape very well. I do have one hemp/cotton long sleeve shirt from them that is thicker than their summer options. Hemp is an amazing textile, much sturdier and less stretchy than cotton, also tends to be more breathable. My complaint with the brand is that their medium tends to be a little too snug, and their large tends to be a little too large. You will need to be careful with sizing.

I've tried several of Gramicci's pants, and I've returned most of them. They're very well made, but they are all cut for the same body shape that I don't have. They tend to be straight from the waist all the way down, and that doesn't work for me. I'm too curvy. I kept one of their pants that's a super skinny ankle pant that built in room for my wide hips, and they're a deep purple color. I paid $10 for them on clearance, so it's ok that I won't wear them too often.

PrAna's organic cotton tops. PrAna is a sustainable, fair trade brand (they are B Corp), but their focus is not on avoiding synthetic fibers. All of the cotton they use is organic, but most of the time it is mixed with polyester. This is because they're an athletic brand and they're focusing on moisture wicking properties. That said, their non-synthetic options tend to be fantastic. They are a very high quality brand, and their clearance prices are reasonable. I can't link to any specific shirt on their website because they update very frequently, but you can search by the fabric content. Such an amazing search feature! Check out their sale section - it tends to be full of a wide variety of options.

I have a hard time recommending PrAna's pants, though. I'm always between sizes, so they're either too big or too small. Some of the ones that have fit me have been too stiff. The quality is so high that it's hard to move in them. Recently most of their pants have moved towards being a cotton and polyester mix, or nylon. They occasionally come out with a natural fabric pant. I have their Avril Hiking Pant, which is all organic cotton with a little spandex. The band is stretchy, not a button close, so they're actually comfortable for most situations. The inseam was incredibly long and I had to hem them, which took some skill to do because the bottom has an elastic draw cord. The problem is that they are hiking pants, meaning they look like outdoor adventure gear and not normal casual pants. I tried on their new Soledad pant last week - I was so excited by the drawcord waist and the non-synethic fabric. I ended up hating it - billowy around the thighs, too tight at the ankle. They advertise it as if you should roll up the cuffs as a style choice, and I was able to, but it was tight.

Tasc Performance. Careful, some of their older styles use polyester and nylon. But they have a big line of a blend of organic viscose (bamboo) with organic cotton. Bamboo is the best anti-odor moisture wicking fabric - it can be made naturally (Tasc does it the best possible way), and it's superior to polyester's abilities.

Look at their St. Charle's collection. It's all made from this fabric, and they have a wide variety of options. Yes, it's all athletic gear, but much of it can be worn in any situation. Their goal is to eliminate the problem of needing different clothes for different situations. It's very high quality, so it might be out of your price range, and their sale prices are not always good enough.

I wear their TFFN sports bra. It's too small, but it fits better than any other organic sports bra on the market. I sweat a lot and this bra is amazing at keeping my skin breathing.



Honorable mentions:

Maggie's Organics. They have a few good options, but overall their sizing is really difficult to work with. Their colors tend to be bland too. They're worth giving a try to see if their clothes will work for you. You'll have the best luck if you're slender. The few articles of clothing I own from them have lasted for years and still look new, so the price is worth it. These are not fast fashion clothes designed to be thrown out after a season.

Fisher's Finery. Like Tasc, they use a mix of organic cotton and organic bamboo, as well as some silk options. The quality is very high, and their clothes are very comfortable. The problem is that they stick to skin-tight pants. They are all essentially leggings and yoga pants, even their business dress pants. This style does not flatter my butt and thighs, so I avoid it in public or without a tunic or dress. The pants and leggings are ridiculously overly comfortable though - it's better than not wearing pants at all. They compress slightly, have a silky texture, thick enough for warmth and modesty, and are not tight anywhere.

Satva. They occasionally have a really good option, but most of the time they're just not for me. They're mostly yoga clothes.

They make organic cotton work out tops with built in bras that I want so badly to like, but they just don't fit. I bought one in large (I'm typically a medium, but I have a large bust). The top is very tight around my stomach, but too big in the bust. It makes zero sense! The shelf bra band is only in the front, sewn into the sides. There is no supporting for the band from the back. The band is too big, so I get zero support whatsoever... but meanwhile you can see the shape of my belly button because it's so tight.


Other brands worth looking at, but I don't have enough luck with:
Woolrich - clothes tend to be boxy and stiff, only some organic options.

Patagonia - I have a lot of respect for the brand paying to research how polyester fibers wash away into our water! They do offer some organic options, but they still focus way too much on polyester... despite the results of their study. They try to educate on how to be responsible with polyester, but I don't think that's the responsible answer. Polyester is the problem, just stop using it. That's my opinion.

Columbia - just like Patagonia, they're an outdoor company that offers some organic cotton and hemp options. When they do offer it, the options tend to be really attractive and unique (a good unique.)

Product Review: Fitbit Alta HR 2

 I have been extra unwell this month, but I have several things I want to write about before I forget to. After all, this blog is to help me chart my progress as much as it is to help you, my readers, find your own path based on my experiences.  

I decided to buy a few things for Black Friday, one of them being the Fitbit Alta HR 2. This review will look at it not for fitness or athletic reasons, but almost strictly for how well it helps keep track of heart rate issues.

The reason I, as a person diagnosed with POTS and Inappropriate Sinus Tachycardia, have been so hesitant to even bother investing in a tracking device is because they simply haven't been good enough. They're still not good enough. The new Apple watch might be good enough from what other people have told me, but I really don't want to buy any Apple phone or PCs or tablets to pair it to. What I mean by "good enough" is that they are not accurate enough measuring HR on the wrist (a chest strap is still the most accurate), but also that they don't record HR often enough and miss when the HR spikes. I also am getting really burned out on this whole chronic illness problem I have, so the constant reminder that I have problems isn't the best for my mental health. The problem is, I was constantly reminded I have health problems even without wearing a tracker, so is there really a difference if I wear one? Maybe it's more fun for me to see and track details about my problems as they come up?

I decided to go with the Alta HR 2 for one main reason (other than the major sale price): it will take continuous heart rate measurements. Most trackers only track while you're working out, if you put it in work out mode, and capture your heart rate every 5 minutes or so. This one will show me my current HR every time I look at the Fitbit itself. I did have to program it to be in "continuous" mode, it doesn't automatically do that, but it works fairly well.

I've used this for a couple of weeks now. It already revealed something that I've learned from my Oura Ring, except that the Oura only measures HR at night. This is measures through the day.



I was in PMS when I first started to wear the Fitbit. It showed that my average resting heart rate was around 80 during PMS. I started my period on Sunday, December 9th. See the difference after that day? My average resting HR went down to the lower to mid 70's. My Oura Ring is still much better for using HR to track my period because it's measuring HR only at night, when I'm still. Going to work having an active day doesn't factor in to affect my lowest heart rate. My Oura also gives other good tracking info for my period, like body temp and respiration rate changes. If you're looking for the better tool to track your period with, I'd recommend the Oura Ring over Fitbit.

The green in the HR chart is when my heart rate is normal. When my HR is above 94 bpm it turns yellow, which is the "fat burn zone." I have to laugh really hard at the fact that I'm often in "fat burn" for 5 or more hours every day... and I have fat to burn on my body! I'll show more details about this in the next photos. With this weekly chart view alone I can see that I have tachycardia problems. If I wanted to, I could change the fat burn zone to start at 100 bpm, and then all the yellow would only show when I'm in tachycardia. The medical definition is that a normal resting heart rate is 60-99 bpm. But if you're just sitting on the couch listening to relaxing music and your heart rate is 94-99, don't you think that's too high? That's why I'm leaving it set at the default 94 bpm. I definitely feel like my heart is working out at 94 bpm.

So, is this Fitbit helpful for POTS? (POTS being an increase of 30 bpm or more when going from sitting to standing.) I'll show you in photos why it's only mildly helpful, and why I wouldn't insist any POTS patient go out and buy one.

Here is a day when I was very symptomatic.



The problem is that each point on this chart is about 5 minutes apart. I watched as my screen on the Fitbit showed 150's and 160's, but those numbers don't show up here in the app. It's because when I peak, I only stay at that high HR for maybe a minute or two at the most. Not long enough for the Fitbit app to record it. It happened to catch that I was near 130 in the evening, but what if that peak was actually in the 150's? So yes, the app shows that something wacky is going on, but there are not nearly enough details to actually use the information. If I were to want to use this information medically, I could not. It might be enough to convince a doctor to prescribe a heart rate monitor, like the Zio Patch I already wore for 2 weeks.

But let me show you the day when I felt the most normal/ healthy since wearing my Fitbit.


I did not work on this day, and I was very restful all day. It's a big contrast to the last day I showed you where I was very symptomatic. The data can give a decent overview of which days are better than others, as long as you're not trying to rely on the finer, often more important, details.

What I'm finding is that the most helpful feature, by far, is being able to simply look at the screen and see my HR. I've compared its readings to my pulse oxygen meter's readings, and they're almost always the same.


Most of the time. When I'm symptomatic or my HR is changing too quickly it just shows me a few dash lines instead of a number. There have been plenty of times when I wanted to know where my HR was, but it couldn't read it. My pulse oxygen meter has the same problem - I can't trust that it will actually pick up a reading either.

As far as using the Fitbit for steps, food tracking, water logging, period tracking... that's not really what I'm using it for. I greatly prefer Clue for period tracking, and the feature on Fitbit is very irritating for someone who is not regular. I check my steps, but it really doesn't mean much to me. I learned what I wanted to from my steps with my Flex 2. At this point, the only thing step tracking is good for in my case is with the Achievemint app. If I were trying to get more physically fit I would use the feature, but I don't have the energy.  Food tracking and water logging? Hahaha, you really think I'm going to take the energy? I don't believe in counting calories. I believe in eating the right foods at the right times, and I'm already doing that.

As for sleep tracking? I'll analyze that against my Oura Ring later. I'm curious, but honestly I've been struggling way to much to have the energy to compare the two devices. This Fitbit does show all the same sleep stages that the Oura Ring does, but the technology is different, and I would be surprised if the Fitbit were accurate. The Oura Ring is only about 65% accurate (according to the Oura Ring user's group I joined on Facebook), and it specializes in sleep tracking.

One big problem I had right away, that I was able to change, was the band. The original silicone band that came with the Fitbit gave me eczema. This surprises me, because I used to wear a Fitbit Flex 2 for about 2 years. That silicone band did not cause a reaction with my skin. I went on Amazon and bought a pink genuine leather replacement band for $6. With my MCS issues you'd think that a dyed leather band would be more problematic for me, but nope, I've had no issues with it so far this week.

And if you're not concerned about the EMF radiation, the fact that I can read text messages on my Fitbit is pretty handy! I also like actually having a clock on my wrist too. It's a massive upgrade from the Flex 2 I was wearing. That said, I would prefer to keep my EMF exposure as limited as possible, while still actually using technology. I keep my Oura Ring in airplane mode for that reason. I could do the same for the Fitbit, but right now I'm using the "all day sync" feature.

In conclusion:

If you have the money to spend, yes, it's useful and might even be helpful, if you're not relying on accuracy. If you're tight on cash, don't worry. I don't think a monitoring device like this is essential for mild to moderate POTS patients.

Ableism

This post is not directed at anyone personally, it's actually inspired by a different blog I just read. I wanted to share my point of view on the topic. Some might think it's directed at them given how much I've struggled this week, but I promise it's not directed at anyone.

I want to talk about this other "-ism." The one that the media, "tolerant" people, and society in general doesn't talk about very often.

"Ableism"

Ableism is a concept like sexism, but in the case of ableism, it's an idea that disabled people can do what able bodied people can do. It seems obvious: a disabled person is not able to do everything a healthy able bodied person is able to do. It's obvious when you see someone with a broken leg. You would automatically understand that that person cannot run a 10k, because running requires both legs to be working properly. It is not obvious, however, in the case of people disabled by invisible illnesses. Do you assume that a person is fully able bodied just because you don't see obvious signs of disability, such a broken bones?

Ableism is a perspective rooted in misunderstanding, a lack of empathy, and often times just simply naivety. I'm not using the word ignorance here, because being ignorant implies that a person chooses to ignore the facts and wisdom about something. Ableism typically is not rooted in ignorance, because it's typically rooted in people who have never been presented with facts and wisdom to be able to ignore it. Ableism is due to a lack of advocacy and communication.

I normally get annoyed by the "-ism" talk, as I find that it's often over simplified as a means to be negative about someone or something. In the case of "ableism," however, I'm annoyed by the lack of talk about it at all! So I want to discuss my point of view on it.

I am disabled, but it's not obvious. My illnesses are not always invisible, but I don't let you see me when they are visible. When you do see me, it's because I have enough control over my body to act like a normal healthy person. This probably creates an assumption that I am actually healthy enough to do what any other healthy person can do.

You may assume that just because I occasionally drive a car that I can always drive a car. On the contrary, I often choose not to drive my car and will cancel my plans to avoid driving. If I drive when I'm not feeling capable it could be life threatening to myself and others. When I'm fatigued and weak my reaction time is very slow, both physically and mentally. When I'm fighting dizziness or vertigo it would be like drunk driving. When I'm in a pain flare I would be too distracted to focus on the road. The reality is that I don't drive very often, and when I do, I've prepped myself with my supplements, the right meal, and enough sleep first.

You may assume that just because you see me on my feet running around at work or the grocery store that I'm always able to be on my feet running around whenever I want to. Just like with my ability to drive, I have to prepare myself for these occasions with the right supplements and food first. I only work part time because I'm not capable of keeping my body in a state where I can be on my feet running around more than part time. I have to make choices, such as if I go to that outdoor autumn festival today, will I have the ability to work my shift tomorrow?

You may assume that just because I occasionally lift weights for exercise that I could do a graded exercise program to get better at lifting weights over time. Except every time I try to improve at some form of physical fitness my chronic fatigue gets worse. I only do what I feel I'm able to as I'm able to. I try to do enough exercise to burn off the high protein diet I eat, but not so much that it drains my strength for more important things, like going to work. Most importantly, just because one day I do 2 sets of 10 reps on my weight machine one day, does not mean I'll be able to carry that 25 pound box from FedEx up my stairs the next day. My strength ebbs and flows, it's not constant or predictable. My ability or inability to exercise in any given moment also determines how well I function in general.

You may assume that just because you see me in public talking to people like it's no problem, does not mean I'm able to talk on the phone at home any time. I can't tell you how many people have suggested I also work from home at an "easy" job like taking McDonald's orders over the phone. Do you realize how much energy talking takes? Especially in a fast paced job? It's difficult for me to keep up mentally, I start to stutter, sometimes my voice goes out on me, my voice gets rough and growls, I say the wrong words without realizing it, I can't say the words I'm reading because my brain won't translate what my eyes sees to my mouth... talking is like a sport to me! It's exhausting! Again, talking is a skill I reserve for times when I need to.

You may assume that because I'm a human being and I need to eat food to survive, that I should be able to order take out so that I can eat when I'm feeling too weak to cook for myself. Sorry, nope. I have yet to find a single restaurant in all of the city I live in that serves a dish I can safely eat for a price that I can afford. I'm not going to pay $40 for a 6 oz grass fed steak from a place that normally butters their steaks. I seem to be allergic to dairy, and I've learned that telling a server about my allergies doesn't mean my meal will be allergen free. Chefs make mistakes very often, or they simply don't know that an ingredient they always use would contain the food I'm allergic to. I MUST reserve enough energy to prepare my own food - this is a necessity for me. There's no other option. I can't live on convenience anymore, sadly, even though I need convenience more now than ever due to my fatigue.

You may assume that I can stand up as needed, such as during church or during the Pledge of Allegiance. I have a condition called POTS. I think it's fairly mild compared to many other people I've talked to with POTS, but 2 doctors have told me I have it. It means that when I go from sitting to standing that I experience pre-syncope - the feeling that I'm going to faint. My vision gets weak, sometimes black, I get very dizzy, I see random colors spinning around me, I can forget to breathe, my stomach and bladder sink, and I feel like I need to collapse. I'm not prone to fainting, so I often will stand up and deal with feeling all of these symptoms until my body finally adjusts and I stabilize. But what if that time is the one time I do faint and I hit my head on something on the way down? You can't see everything I feel when I stand up, but I experience it almost every time. I do my best when I slowly stand up, then stay on my feet and moving. I can't stay standing in one spot long, I must keep my circulation up.

You may assume that I can manage my periods just like any other woman has to manage them. Except that not many women have endometriosis, POTS, chronic pain, and chronic fatigue like me. There is no cure for endometriosis. There's hardly even ways to manage it. There's no cure for POTS, and no official FDA approved drug to treat it. When you put endometriosis and POTS together, you get this disastrous combination of extreme pain with extreme weakness. PMS can mean exhaustion to the point of being out of breath just trying to get to the bathroom. The period itself can mean I'm so dizzy that everything spins around me while I'm laying in bed with my eyes closed.  Not to mention all the other symptoms. For about 12 years now I've been completely incapable of doing anything other than laying in bed and sitting on the toilet for the first day of my period. Surgery didn't help. At all. Healthy women with a normal period and some "normal" cramping can take a pain killer (if they even need it) and go on with their day like they're just a little extra tired. That sounds like a miracle to me. For years I took 12 ibuprofen on the first day of my period to manage the pain. It wasn't enough, but nothing else I tried worked better.

You may assume that just because my hair is clean that it wasn't a struggle to wash it. 50% of the time I shower I'm sitting on the floor of the shower while I wash. It's because it's exhausting to hold my arms up and stand up at the same time. My heart rate skyrockets and I get out of breath. I always wait to shower until times when I'm feeling strong enough. When I have to shower, but I'm not feeling strong enough, I'll often choose to not wash my hair and go out with dirty hair.


I could go on with many many more examples of how I'm not able-bodied. My disability judge and a few doctors agree. (Yes, I won my disability case after 3.5 years - but more on that some other time.) I'm disabled in many ways. But I look healthy. I do my make up, put decent clothes on, wash my hair, don't wear any casts or medical devices, I avoid engaging with people when I'm struggling cognitively... odds are, I won't give you much reason to assume I'm disabled when you actually do see me in public.

What do I need from you? Why do you need to understand all of this?

I need you to believe me. If I say no, I'm not capable. If I say no, I'm not up to it. If I ask you for help, please help. Don't argue. Just believe me. Don't shame me. Just trust me. 

I'm a highly independent person who likes to do as much as I can for myself. I've always thought that I need to do things myself to make sure they're done how I want them done. When put a knife through my thumb and couldn't use it for a few weeks, I taught myself how to put my bra on without that thumb. When I couldn't use my right hand due to major wrist problems and was in a brace, I bought a mouse I could use with my left hand and taught myself to write with my left hand. I get creative so I can stay independent. I avoid asking for help. So getting to be this sick has been a challenge for me, because I've had to swallow my pride and learn to ask for help. I've had to accept that I can't perform to my personal standards. It's very humiliating to me. So when I ask for help or say no, and you reply with a lecture or a snarky comment, you just add to humiliation I already personally feel about myself. If you need to say no to me, just say no. Don't attack me in the process.

Ableism. The idea that you assume someone is able to do what you are able to do.

Thanks for listening. :) 

Don't Tell Me, "Just Exercise!"

I get pretty upset when people tell me, "Just exercise more! Exercise cures everything!" It shows they have no understanding of my illness. It also shows that they don't notice how much exercise I do get and how proud I am about it. I lift weights at home, use my Pilates ring, go on 1-2 mile walks a couple times a week, and work at a job in which I'm on my feet the whole time. I also do 50-100 jumping jacks at a time when I have adrenaline rushes to burn off, and that's almost daily. To you this might sound like a joke, but to me it's more than I was able to do a couple of years ago and I'm very proud of my progress.

On a day like today I can't simply just get up and exercise to fix my symptoms. My head feels like a hot air balloon, like it might float away. It's making me dizzy, and when I get up the POTS symptoms kick in. I instantly get clammy with sweat, my heart rate skyrockets, my heart palpitates, I see colors spinning all around me and my vision blurs, and my muscles loose strength. It's as though I'm on the verge of fainting, but I don't faint easily. PMS made me faint once, but I'm not PMSing right now. I must let myself sit down or drop to the floor until my heart calms down and my vision returns. Then when I stand back up again I have to do it very slowly, and I might start feeling the symptoms again if I start walking too soon. As long as I'm still I feel okay, but I can't stay still for too long without my blood pressure getting too low and I crash.

I'm not feeling like this every day. I don't feel the POTS symptoms every day. Other days I can just have fatigue so strong that even walking around the house makes the fatigue worse. On days like that I have to do nothing. My body is begging for time to rest and repair, and if I dare try to exert myself it's going to give me the equivalent of the Blue Screen of Death (the worst error message your computer can give you.) On days like this I don't necessary get dizzy with high heart rate when getting up. I just have to force my muscles to move, because they really really don't want to. It's more than just willpower to move my legs, it's necessity. If I don't walk to the kitchen I won't eat. If I don't eat I'll get hypoglycemic again. If I get hypoglycemic I might be so far gone that I'll go into a coma. Of course I get terribly anxiety on these days, so I can't just lay in bed resting. I have to somehow shut off my brain with homeopathic pellets and pills. They can leave my brain too numb to enjoy anything, but not let me just fall asleep.

Some days I think I'm having a good enough day and I do go out for that long walk, only to come home and measure my blood sugar in the 60's or so. I get symptomatic when my blood sugar falls below 85 - and before you argue that's a healthy number, you need to understand that my body can't handle being below 85 even if your body feels best at that number. When I'm at about 85 I start to feel the tremors and shakes, the low dull headache, the mild tunnel vision, and the deep cold start to settle into my body. We all have different bodies with different needs.

I'm not getting low blood sugar quite as easily these days, but my diet is so careful and I still take my chromium with pancreas glandular. I'm also having fewer days with the severe chronic fatigue that forces me to do nothing all day. I'm recovering faster from over excretion, and I'm finding that I have more days where going for that long walk doesn't make me crash. I never come home from that long walk feeling better than before I went, it does take a lot of energy for me, but I'm finding I crash less often after my walks. That said, what if I over exercise to try to improve my health and end up going backwards by overspending myself? I don't want to lose any progress I've made with my health. I need to be careful with how I spend my energy.

...But I am having more and more days when I go to work not feeling rested enough to handle the shift without some sort of boost. I used to only add matcha to my water bottle on days when I really needed the caffeine, but it's turned into needing that matcha every shift, 4 days a week. I haven't had a shift in a few months in which I've felt able to work without the caffeine. So I can feel myself sliding backwards from over extending myself. Ideally, I'd take a few weeks off of work to let my body fully rest, but financially I cannot afford to do that. It also wouldn't be fair to my co-workers. And that job is physical. It is exercise for me. Being on my feet for 4 hours, walking around the store all day, lifting heavy boxes, going up and down from bottom shelf to top shelf... I feel my best in jobs like this. My blood needs to keep moving to feel well. I'd do so much worse at a desk job. But it's very draining. I do so little at home because I save up all my energy and strength for being at work.

I'm getting so sick of hearing, "Just exercise!" If you're able to say that to me, you clearly have never experienced this level of fatigue. Don't argue with me. Arguing makes me angry and drains me way too quickly. Anger doesn't settle down for hours in my body. My body can't processes strong emotions well. My adrenals can't keep up with the energy strong emotions take. All I'm asking is that if you want to give me a suggestion then please don't give it to me as a demand. Don't tell me what to do. Respect my needs. I'm very open to suggestions when they're given to me in a gentle non-judgmental manor after I've been listened to. But don't come on strong barking orders at me when you haven't listened to what I'm going through. I'm likely to shut you out of my life and ignore you as a defense.