Kindling Health
ME/CFS. Multiple Chemical Sensitivity. Allergies. Fibromyalgia. Arthritis. POTS. Anxiety. Calcified Tendons. Depression. Endometriosis. And more. I'm moving forward with my life!
Thursday, October 24, 2024
I Finally Caught Covid...
Anyone who knows me knows I thought I was immune to covid, and maybe I was up until now. I never caught it during the pandemic, and I thought it was because of my blood type or genetics or something. They also know that I was afraid to catch covid because it is known to cause POTS, which I already have and I absolutely do not want to make it worse. So when I tested positive I was naturally very scared. Turns out covid has mutated enough, so if I had any naturally immunity before, covid learned how to bypass it.
Let me back up. Why did I go to Washington DC? My husband was invited to present at a conference in West Virginia, and we decided to stay with a friend who lives in DC so that we could see DC since it was so close. This is how he is. His ambition is so strong that he doesn't expect (or he simply ignores) the reality of his plans to fulfil his ambitions. I'll say a few things about the trip to help you understand my exhaustion:
It was supposed to be a 6.5 hour drive to DC. That's like driving from Bismarck, ND to Minneapolis, MN, which we did several times. Except that on the east coast you should always add a couple of hours to driving time due to traffic. About 8.5 hours later, after a lot of stop-and-go on the interstate and the need to exit the interstate and drive through towns to avoid crashes on the interstate, we arrived in Harper's Ferry, WV. We stayed in a great little mostly fragrance-free Airbnb. The next morning we wanted to spend 1 or 2 hours being tourists and seeing the sights of this tourist town, but what we quickly discovered was that it was impossible to park anywhere near the attractions unless we paid $20, and we were not going to be there long enough. Also, he was in his dress suit. So we drove through the town, and later a friend told us we honestly saw it all just by driving through, so I don't feel so badly. It was quaint, but just a historical village with a good view of the rivers.
So we drove to Sheppardstown, WV and I dropped him off at the college where he was presenting. I took my licorice pills with enough green tea that I felt strong enough to go exploring a little on my own. Well, I tried to follow GPS to a park along the river and I ended up going over the bridge and into Maryland. Then I made my way back and had lunch, then went shopping downtown. It was a cute downtown with an herbal shop, a sustainable living farm store, a really cool bookstore, a natural fiber only women's clothing store, a small new apothecary that focused on soaps and salves, a fantasy figurine store... lots of really interesting places. But after all that I was tired, and it was time to go pick up the husband. The trouble was that the husband was feeling sick and not well enough to drive, so I needed to drive us most of the way to DC. He was thankfully able to finish the drive. It was supposed to be 1.5 hours, but it took us about 2. We arrived at the restaurant and met our friends, had a great meal, explored Alexandria and found grass-fed organic gelato, then went back to their place for the night.
I was too overly stimulated from doing too much, so it was hard to sleep well. My husband slept maybe 2 hours, but he has insomnia issues. But this day was the big DC day! This was the day we needed our energy for!
Thankfully our friend works in DC, knows how to get around, and was our tour guide. He drove us everywhere (except the two times we needed an uber) and saved us A TON of time and energy. We toured the US Capital building, went to the Library of Congress, went to the Smithsonian Natural History and American History Museums, went to the monument, went to the Cheesecake Factory, went to the Vietnam and Korean war memorials, went to the Abe Lincoln memorial, and then went to the Thomas Jefferson memorial. We arrived back at 11 pm, totally exhausted. I think my experience of this day deserves a blog post because I felt like I was on a pilgrimage and I felt really enlightened by many things I saw. The problem with this day was that I was around so many people from all over the world - the crowds of people (especially in the Natural History Museum) were so thick that it was almost intolerable because it was hard to see much through all the people.
So you can image all the opportunities I had to catch covid, on top of being worn out and exhausted. And weak from reacting to fragrances and fumes.
Sunday, the drive home. I woke up with a strong sore throat, but I thought it was just my ME/CFS and I was crashing. I wasn't well. I barely had the energy to load the car with my things. We went out to breakfast and I was able to eat well. I chose to drink coffee knowing I needed the push to help me survive the day. Coffee normally affects me badly because it's too strong and hurts my heart... this barely did much for me. We drove for a while and arrived at Whole Foods midway through the day. I should have been really hungry, but my stomach did not want food. I bought a super light meal of fish and force fed myself, but my throat hurt and my stomach was not happy. Okay, I still thought it's just ME/CFS. Shopping was annoying and difficult. I didn't have it in me to think through much, but we had to buy groceries to stock our fridge with. (Hurricane Helene caused a lot damage and made grocery shopping a major difficulty, so we had to shop in Charlotte the week prior and then chose to shop out-of-town again on the way home.)
We get home, and Monday and Tuesday I felt sick with a sore throat. I wasn't well, but I kept thinking it was just a sore throat and cough from ME/CFS. I went to work at my new job (this will be another new post) on Wednesday, but I wasn't ok. If it were any other job I would have called in sick, but this is a new start-up business with very very few customers so far, so I sat there for 5 hours without talking to anyone. While I was at work I started to get body aches and a fever developed. I was so uncomfortable that I realized it was worse than my normal "feeling sick with ME/CFS" crap. So after work I bought a Covid test kit. Within a few minutes the kit showed a strong line for Covid. After 15 minutes the line was even stronger.
My symptoms were out of order. I started with the sore throat and cough for 3 days, then developed the body aches and fever (stayed around 100.5, didn't get hotter) for 2 days, then I finally developed the congestion and "head cold" stage which has lasted 7 days so far. I'm still sick right now, but it's just manageable congestion now. I wasn't able to sleep without taking this (it's a clean version of Nyquil made by Genexa) because otherwise it wasn't possible to breathe and my coughing wouldn't stop. I lost my sense of smell and taste, but not completely. I could taste 20-30% of anything I ate, and mainly just the bitter parts. I had a burger patty and I could only detect the texture of it, I really couldn't taste it. I had horseradish to try and drain my sinuses, and I could feel the heat but I couldn't taste it. I haven't really experienced that before, so it was alarming.
Covid wasn't as intense as other illnesses I had (H1N1 that caused my POTS is still the worst I've had), but one thing it did do to me that I have not experienced from other illnesses was keep my heart rate up over 100 bpm for 3 days straight. Even at night, my heart rate remained high. My Fitbit and Oura Ring were both giving me a lot of warnings of tachycardia while at rest. This was abnormal for me, even with POTS. I'm used to my HR going down to the 80's while I'm resting, or even crashing low into 50's when I put my feet up. When I'm on my feet I'm usually above 100, yes, but not at rest. So this showed me how hard my body was working to fight Covid, and it does give me some concern.
My high heart rate was why I wanted to see a doctor for a saline IV. The problem was, Hurricane Helene destroyed the plant in North Carolina that makes the IVs. So the doctors said no, the best thing I can do is drink electrolytes and stay home and rest.
I got covid really quickly. My husband, on the other hand, didn't develop covid symptoms until 5 days after I started having symptoms. He progressed through it faster than I did. It only knocked him out for 6 days, and I'm on day 12 still with symptoms.
It's too early to tell how covid is going to affect me long-term. I'm weak and exhausted, I still can't taste much, and I'm still symptomatic.
Wednesday, September 11, 2024
Health Requires a Moral Compass to Achieve
This is why health is not determined only by things such as your blood pressure, psych eval, or if you go to church. But it is why finding a community that brings your soul peace can lower your blood pressure and encourage a better mental attitude.
This is why health starts with a good upbringing in a stable family, receiving a quality education, having the opportunity to learn and practice skills, and being loved unconditionally.
This is why relationships in adulthood either grow our health or poison our health. If you choose a partner that grows with you in love and purpose, your mind, body, and soul all have the fuel they need to be healthy. If you choose a partner that always questions you, discourages you, takes from you instead of giving to you, and abuses your love or commitment then your mind, body, and soul stay stagnate and cannot grow. Health cannot be stagnated, because it must stay in motion along with the process of aging.
This is why it's necessary to learn how to maintain our health. We must learn the skills of love, empathy, emotional intelligence, spiritual servitude to all of creation, and integrity in order to live a healthy life and inspire health in others. We must learn to be physically active in creation in order to fulfil our purpose and create the connection to creation that our souls rely on. Our bodies need food, sun, water, and fresh air to be healthy. Our minds will wander without direction unless we are connected to healthy communities of people and living in harmony with creation.
We cannot be individuals. Not really. We own our minds, bodies, and souls, yes. We own our choices, yes. But our existence depends on each other, and our health is determined by each other. If you own land, you impact the health of the surrounding land other people live on. If you drive a car, you impact the air other people breathe in. If you eat food, you poop it out and that impacts the soil or waterways (for better or worse, ha!) If you lose weight, it evaporates into the air other people breathe. You really cannot fully isolate yourself from others, and your actions have an impact on everyone else.
That's why there are always ripple effects from your choices. Make the ripple a good vibration that helps others live their best lives too.
This is why we build strong moral compasses: we recognize the impact of our actions on other people, and in turn how our actions affect our own health.
I believe this is why we have so many broken families. I believe this is why we created an economy that relies on every individual person working full-time, instead of focusing on building families that raise our children. I believe this is why we created a society that has no problem with slave labor, keeping people in poverty, and feeding everyone very low-quality unhealthy food. As a result, the birth rate is plummeting. The health of people, especially those in the USA, is dramatically plummeting. Haven't we learned that humans only thrive in communities? If we don't take care of each other and instead we continue to exploit each other, then we're not going to be able to maintain the civilization we built because there won't be enough humans left to do it.
The most powerful thing you can do to help restore the health of fellow humans is to be healthy yourself. Make a commitment to your own health. Start with the foundation: love your family by always encouraging the best for them, choose healthy foods and time in nature for your own body, and stop losing your mind to all the distractions that don't help it grow. Be the change you want to see the in the world. Humans thrive on community, but it takes healthy individuals to create community.
I know, without a doubt, that my physical illnesses are impacted by the people I choose to invest in. Yes, I get tired and need to rest after laughing with people I love, but it feeds my soul and I feel at peace while I recover. When I'm instead drained by poor interactions, such as arguments or listening to complaints from unhealthy people, I have to protect my mind and soul from the corruption while I recover, which leaves me more tired and takes me longer to recover from. When I feel attacked and disrespected, I feel myself growing very icy cold, my fingers and toes get numb, my throat grows hoarse, my vision blurs and I get tunnel vision (literally in my sight, not in my thoughts), my teeth clench and it's very hard to open them to speak, my gut gives me really sharp pains, and more. All my physical health issues intensify, and then I have to recover for a long time from that. This is why I'm extremely careful about who I choose to spend time with. This is why I give my energy to people really carefully. But when I'm with my people and I'm feeling connected and happy, it's so much easier to endure my chronic illnesses. Seriously, it's really incredible.
We have to love each other. We have to develop moral compasses. We have to make choices that only feed the health of all of creation. We have to learn about each other and how nature works. We have to make educated choices to make moral choices. If we don't collectively do this as a society, we're going to fail each other.
I know I'm guilty of complaining a lot based on my anger that people don't choose to be better. I have to learn how to be better, that's where I need all of you to teach me too. We all have to be the change we want to see in the world. We have to put out the vibrations other people need to grow on, because we're going to vibrate simply just by existing. Choose healthy growth for everyone over preventing others from healthy growth to feed your own ambition or emotions.
Thursday, September 5, 2024
One Year and 2 Months Since Moving Here Update
The reality is that I'm feeling stuck in perpetual exhaustion. Each day I'm striving to just keep up with the emotional turmoil in my head, the physical demands of my weak body, and the chores around the house. I feel like I'm constantly waiting, so I can't start a project or do anything because I just have to wait, but what am I waiting for? I have no idea. The problem is, when I'm doing things, I feel like I have to rush and do them as fast as possible. I'm sure my adrenals are shot again. I think it would help to have a job so I could have some sort of routine or rhythm in my life to help me pace. Searching for a job has been a nightmare here - my options are all physically demanding for very low pay. I've been applying for jobs, but I've never been invited for an interview. Maybe it's because I'm asking for more than $9/hr and only part-time hours? There is a serious lack of part-time jobs here - the work culture here is very "all or nothing." Work-life balance? That isn't a concept here. I also think I'm judged for being from the north. There's a strong dislike of all the northerners and Californians moving in, and my accent gives me away.
There is a war inside my head that is seriously taxing me. I have major life decision fatigue, and my inability to take action to fix my life is making me feel worthless. Half of me believes I need to snap out of this slump, pull myself together, and go work any job I can get just like other people do. The other half of me knows my health is too poor to actually do that, and it won't solve my problems because not being healthy enough to do the work will make me feel even worse about myself. This half of me keeps coming up with philosophical reasons why all people, even sick people, have value and shouldn't be expected to be worker bees when they're not able to be. This side of me keeps finding peace with my situation, but then my husband comes home from work and we talk about how tight our money is, and I start to spiral back into the guilt of not helping to earn money. I don't know how to enjoy being me if I feel like I'm not contributing, and he makes a lot of comments about how I'm not earing money. And I spiral back down the whirlpool of despair. How can I be at peace?
If I felt settled down, I would honestly consider starting a hobby farm with goats and chickens. I like people, but I don't meet the crazy high demands of people. I used to be able to before I got sick. It's not because I'm lazy - I used to thrive from doing physically demanding jobs for long hours. I enjoyed the work too. I miss feeling and actually being CAPABLE. Life would be so much better if I could just use my body and work! But, I have to deal with my reality: my body can't make enough energy, and I get dizzy and weak from using the energy I do make. And I'm not settled down at all. I do not expect to have a long-term situation here in South Carolina.
I feel like these blog posts are becoming very repetitive, but my head is very repetitive. I'm stuck. I need to get broken out of this cycle of despair.
I do have positive things to write about, I promise! I'll try. But not right now. I need to lay down.
I hope that these blogs serve as some sort of record of how awful life is for those of us with ME/CFS. Let this help someone somewhere feel less alone...
Thursday, July 11, 2024
Product Reviews Due to Changes or Supply Issues
1. Starting with Vital Proteins Collagen Creamer, my favorite part of every morning, and the reason my nails have been surviving thyroid issues!
Thank you for reaching out to us! Our Collagen Creamers have indeed undergone a recent reformulation- this change was made to improve the mixing experience. As this is our new formulation for this product, we will no longer continue to offer the previous version. Our team is working to update the product page to reflect the new formulation. The Maltodextrin used in our product is a combination of corn and tapioca. Based on the information you shared with us we recommend to not consume the product.
Yes, corn. Thankfully I didn't consume it without looking at the ingredients for changes! Allergies aren't the only problem with this situation. Even if I was not allergic to corn I would never willingly buy and consume something with maltodextrin in it due to how it spikes blood sugar in the body (click the sentence for a link.) I'm too sensitive to blood sugar changes and I can't handle ingredients like this.
At the bottom of that email I noticed something:
In Health,
Team Vital
Customer Care Team
Nestlé Health Science U.S. - VITAL PROTEINS
How long as Nestle owned them? Here's the thing about Nestle: I think they do very evil things and I will not support them until they change their terrible habits, but when they bought Garden of Life they didn't change anything about the quality of the product as far as I could tell. I've read that they do tend to take a hands-off approach to companies they buy. So is this terrible business with their collagen creamer a problem of Nestle? Not sure.. but for the sake of having a scapegoat, I will happily blame Nestle!
So I switched to Primal Kitchen Collagen Fuel. I don't like it as well, but it's good enough. No bad ingredients, but it also doesn't say grass-fed cows... normally I'd keep looking for something grass-fed, but all the other brands that make collagen creamers add ingredients like maltodextrin to help it mix better in coffee. This is the only option on the market right now without maltodextrin. By the way, Primal Kitchen was bought by Kraft Heinz in 2018. It is what it is. It's hard to avoid these megacorporations in this world unless I live completely on food I grow myself and farmer's markets. It's more possible to do that here in South Carolina than anywhere else I've lived... but I want my collagen!
2. Dickinson's Witch Hazel Wipes, individually wrapped. These have been "out of stock" for a very long time, and they have introduced a new package with multiple sheets per package instead. I'm all for less packaging, but that defeats the purpose. These were a perfect fragrance-free option for cleaning up while traveling. I used them on my hands, face, and body. They were small and fit into my purse or pocket, so I could keep them with me. I have not yet found an alternative that's fragrance-free at a reasonable price point. I bought out the last of the other TN Dickinon's witch hazel brand individual wipes for now, so I'll look for an alternative later when I need to buy something.
3. Biokleen laundry powder... Now this one has me the most upset of all. I can't link to it because it no longer exists. I prefer powder because it significantly reduces plastic waste, it's pure soap and not mostly water, and it's easier to work with. The problem with powder is they normally require warm to hot water to work. At first, they made their laundry powder with hydrogen peroxide and enzymes, which meant it cleaned and dissolved in cold water really well. I also liked it because it contained zeolite, which binds to mold spores. It helped me decontaminate my clothes. Then they changed their formula and removed the hydrogen peroxide and enzymes. They switched to using citrus as the cleaning agent. I wasn't happy, but it's been working well enough for me. They also offered a fragrance-free version, which normally I would prefer, but I wanted the grapefruit seed oil to help break down biofilms on my clothes and that was only in the citrus version. Now they no longer make it at all.
Instead, Biokleen started to make laundry sheets. 🚩🚩🚩 Red flag alert!! Let me make something very clear: Laundry sheets are TERRIBLE in every possible way. They claim to be better for the environment because they don't use plastic packaging, but what they don't tell you is that every sheet contains plastic: polyvinyl alcohol. You're literally washing your clothes in plastic if you use these, and no, the plastic does not "magically dissolve." Read this study about how 75% of it ends up in water ways. But it's worse than that: these sheets don't work well. They don't dissolve in cold water, but most natural fibers require cold water. They end up clogging up pipes because they don't dissolve. Look... there's nothing good about laundry sheets. Fine idea for reducing plastic, but wrong execution. I'm really upset that Biokleen went this direction instead of continuing to make their enzyme-based laundry powder. I would have paid more for it if I need to, because it worked...
So I switched to Dirty Labs. It's liquid, it uses enzymes, it's fragrance-free, works great in cold water, and contains no plastic at all. Honestly, it's a great product. I really like how well it cleans. I like that it's super concentrated, so I'm not buying water. My complaint, unfortunately, is how messy it is. It's very thick and goopy, so it's slow to pour. It's hard to measure the right amount because not all of it will pour out. They made a dispenser bottle, but based on the reviews it's problematic and needs to get perfected before I spend money on it.
4. ....Oh!! It's back in stock!! I don't have to lament about how my favorite product is out of stock anymore! Lauren Brooke Cosmetiques pressed powder foundation. Yay!!!!!!! This product is very clean, and it works brilliantly. It gives my skin life and a glow, but it doesn't look heavy like foundation. It's breathable and stays in place when I sweat. It's amazing. I frequently wear it without any other make up just because it makes me look normal and healthy.
Wednesday, July 10, 2024
July 2024: What Happened To The Heart?
Despite what I'm about to say in this blog, I'm really grateful for the beauty that I'm surrounded by in my life. I bought this flower at a farmer's market a few weeks after moving here at this time last year, and look at it now. It's the most amazing flower I've ever grown in my life:
I'll be turning 37 in a few weeks. I still feel so young because I feel like too little has happened in my life, but I feel the weight of age on my shoulders. It's compounded by all the doomsday scenarios all over the news: climate change will cause us to fry or freeze until we're all extinct, women's health care will regress until I can't get any medical help at all, it's impossible to afford to raise children, we're running out of electricity, no one can buy homes anymore... You get the point. I feel like I missed my opportunity to live the "American Dream" before it became impossible. Now I wonder if we're all going to die soon anyway. (I doubt it and I won't plan on it, but I entertain the thoughts.)
Part of me is actually really thankful that the "American Dream" is dying, because it's a huge responsibility and not everyone is built to endure it, and it gives me relief to be able to let go of it. Those who are built to endure it are very lucky to have the opportunity to thrive in this country, and I'm incredibly grateful for them! They are the backbone of this country and I fully support their efforts. I thought I was one of those people, but now? It's only a burden of a dead dream for me now. Before I got sick I had a lot of ambition that was instilled onto me. I understood that every person had to have a career, and so I was creative about what I wanted my career to look like. I dreamed of opening my own business, being a published novel author, landing a job working for a company that was going to save the world from itself, and giving TED Talks about how ethics in business actually lead to better productivity. I was a highly idealistic and dreamy person. I was smart and I knew it, but I didn't understand my intelligence type. I fought my natural instincts in order to do the "successful person" things. Since getting sick, all that ambition is completely gone, and all that matters is the energy that arises from my natural instincts... which isn't exactly career-oriented. I'm a nurturer, and I was built to raise a family... something that's impossible to do without a two-career household these days.
I thought getting married was the first step to doing the right thing with my life in order to live my "American Dream," so I got married very young. I thought that was going to motivate me to make money and get my life rolling. It took me a long time to figure out that I was delusional, because I was trying to do what I was supposed to instead of live according to how I naturally am. I was very ready to be completely in love and committed to a person - that wasn't the problem. I'm built to love very hard, and commitment is a huge blessing to me, not a source of fear. The problem was that I wanted to be married because I wanted a family - which is very natural, right? It killed my career instincts. Immediately I found myself putting myself aside to support my husband in all of his dreams. I stopped investing in myself. I took any job I could find, which never paid that much. I had a college degree, yes, but that never helped me earn a decent wage. I had 2 different jobs that required my degree, and both of them paid less than $10/hr. It was very clear to me that I was built to be moral support to my husband, and it was my job to help him fulfil his career dreams. And then I got sick. Goodbye Sarah and all her dreams... getting sick became my life. And you know what? I'm tired of my life being ruled by my physical abilities.
Side story about being a slave to my body so you can understand how difficult it is for me to plan anything in my life:
We had tickets to go see a concert of a world famous jazz musician: Wynton Marsalis. We could choose between going on a Tuesday or Saturday since he was at the venue for a residency. My husband really wanted to go on the Tuesday, but I told him that was my period due date. My period is so extreme that I absolutely cannot do anything on the day of my period, but the PMS is also very intense. It's always better to schedule everything in my life for the week after my period. So I said Saturday was the better day to go. Well, Tuesday came and went and my period didn't come, although the pain was enough to make me believe it would come at any moment. But it didn't. I ended up being 6 days late, and why? It started overnight on Friday and caused me a ton of problems all Saturday morning. We had to leave by 3 pm to get to the concert on time. My husband had been calling around asking for anyone else to take my ticket and go with him, but it was too last minute and no one was able to. I made a last moment decision at 3 pm to go with him, because I was just getting past the worst and was entering the recovery phase. It meant 4 hours in the car, and somehow managing with difficult public bathrooms while there. But I was angry at my body and I was angry that money would go to waste. So I chose to go with him. I wore a dress so I could wear my overnight pad, because my menstrual cup can't contain it all, took some medication, and went with him. I delt with the poor public bathroom options. I was dizzy and wanted to lay down through the concert. But I really enjoyed the music, which lifted my spirits and helped me endure. If my period had started even an hour or two later I wouldn't have gone, so I got very lucky.
Now I'm in South Carolina for his career... I'm not going to write freely about my entire experience here, not at this point in time. But I can say it's been highly unsettled, triggering depression like I've never known before. It's been very difficult for me to just go get any job I can, because it doesn't work that way here. I can't drive far safely - most of the time I can drive 10 minutes before I zone out too much, and there isn't much within 10 minutes. Most jobs here are manufacturing jobs, followed by fast food. Manufacturing jobs are never going to work for me because they'll never hire me part-time, and the jobs are highly physical and require more energy than I have. So many of them are essentially slave-labor too... I have been told many stories from locals here. Many of them only offer rotating shifts of 12 hour days, but the work is highly repetitive and causes repetitive stress injury. No, I can't survive in that environment in my physical condition. To be clear, it's because of the small town I'm living in. If I were in one of the cities I wouldn't be having such a problem... maybe. There's a lot of competition for jobs. South Carolina is growing rapidly. I feel extremely useless... like there's no reason to be alive. I could get into the climate, pollen, mold, poor infrastructure, and poverty issues too... I could write a lot about how inhospitable it is for my health condition, but I imagine I don't need to explain much. Extreme heat, pollen, and widespread mold problems says everything. I feel like I lost a battle with the culture of this state before I even took a swing at it. The standards of living are very low, and the expectation is that every person is able-bodied and can work like slaves. At least in the small town I'm in. Imagine me calling in sick for my period... it doesn't matter that I have endometriosis. I would get fired quickly.
Aurora's new album, "What Happened to the Heart" has been a massive inspiration for me these past few weeks. I know I'm always sharing her music in this blog, but she always expresses what's in my heart and on my mind. It's very poetic and the themes align perfectly with all the weight on my own heart. She sings about what it means to be human in a disconnected world: tackling issues of AI, loss of independence and the desire to be free, inability to repair relationships due to selfishness, how to be remembered in a world that isn't paying attention, worshiping idols that don't love us back, and how necessary it is to love. I was already feeling all the themes very deeply, then she comes along with this album that expresses my heart perfectly. But I know we're all feeling these themes to some degree.
The Essence
A Soul With No King
Thursday, June 20, 2024
Things I Do at Home
I've been spending all my energy just managing this house... Energy for blogging? Hasn't really existed, but I have the desire to share some things I've been doing. I've also been feeling the return of wrist pain, and my muscles have been really stiff in my arms. Typing isn't flowing like normal, I have to work harder to do it.
1. Grating Frozen Beef Fat:
Yes, I've discovered this trick and it works brilliantly. We bought a quarter cow last year, but the beef was unfortunately 90% lean, so we asked for beef fat to add into the burgers. I'm not a fan of lean burger because they're so dry and unpleasant, but also because the beef fat is very healthy. It fuels my poor brain! I can write about my experience with healthy vs unhealthy fats in a later post, but beef fat is one of the best for me since I can't have dairy. Anyway, the burgers grill so much better and taste so much richer because of the beef fat! I also use it for seasoning my cast irons, and I'll cook with it occasionally. I'd use it exclusively, but it's a real (excuse me..) bitch to clean up out of my ceramic pans. I go through too many paper towels... so I use it in my cast iron pans, which I only use on the grill or in the oven.
What I do is.... well, look at the photos:
Yep, I grate that block of FROZEN beef fat like it's cheese. The shavings are light as air, and they do not get sticky as long as they stay frozen. So they key here is to grate it frozen, then put it in the freezer for storage. As long as it's FROZEN it is very easy to work with.
Cleaning up isn't as terrible as it looks as long as the shavings are still cold. I like to rub it on my skin as a lotion!
2. Car Wash, Naturally!
South Carolina pollen is INSANE, so it seems pointless to wash my car, right? But all the bugs and spiders that love to live in my car need to go away. Normal people would drive through an automatic car wash, but I'm really not a fan of them. They can cause damage, they're horrible for the environment, and the soap stinks. So if I can do it at home with fragrance-free soap, why wouldn't I? All I'm missing is a power washer... that would save me a lot of strength and energy. I just used the hose, a giant sponge, and this fragrance-free plant-based car wash:
Guess how many spiders I found on my car while I washed it? 3... shudder... thankfully I have never seen one inside my car, but they sure love to build webs all over the outside. It's totally unacceptable.
3. Making Popsicles
The pink ones are Ultima Electrolytes in water. It didn't work very well. The powder settled to the bottom of the mold, and I ended up with half of it being a very lightly flavored ice cube. No bueno.
The white ones were supposed to be more like an ice cream replacement, and they were pretty good. I used coconut milk, allulose, vanilla, and ground orange peel. I didn't measure, sorry. I kept adding and mixing to taste. I think I watered down the coconut milk too much because it was like licking an ice cube, but the flavor was good!
4. Sticky Bug Traps!
I do see dead roaches, and I have to assume it's because they ate the boric acid tablets I put around the house. I have to assume boric acid works too. I put a layer of diatomaceous earth around the house too, and I've seen lots of dead ants in it.
Wednesday, May 1, 2024
Everything I do I do for Love - An ME/CFS Lament
I do.
There are rational reasons for feeling this way. This was not a move that offered security, but instead, amplified a lot of doubt about the future. Adding to the instability is fear of the economy. We're in stagflation now, some have called it a silent depression as well, and an official recession is looming. I don't feel like I'll survive if we carry on as we are right now. I worry the jobs and then the money will disappear. As someone in a reel on Instagram said, "There is no middle class now. You either have money or you don't. If you're making only $100k per year, you don't have money."
The problem with ME/CFS is that the condition doesn't allow us the energy to worry. If we spend energy on worry, we won't have energy to do anything else. It makes it extremely challenging to plan complicated issues such as surviving a major economic crash, and if I do come up with a plan, it's even more difficult to find the energy to take action. If you have a spouse that doesn't agree with you, it's almost impossible to fight.
This morning I was incredibly tired from days of mental gymnastics, trying to plan my future so I'll be ok. I'm still in a daze, but if I don't release these thoughts then they'll continue to drain me. I sat outside on the porch and watched the birds, soaked in the sun, and let my mind take a break. I just let myself feel tired. The problem was that the thoughts kept coming back as I observed the world around me. I thought about how I would love to be a bird, because their lives are simple: survive and procreate, but have fun flying too. Sure, they have all sorts of stress, such as being eaten by other animals, but their lives are not complicated by the societal expectations of other birds. And how humans can't just let humans live the way birds let each other live, we all have to compete for money and make ourselves useful to people with more power than us. I watched all the cars drive by on the road in front of my house. Many of them were business vehicles: pest control, heating and air, campus security (I live on the edge of the university), emergency service vehicles... how many of those people are going to earn enough money doing those jobs to keep a roof over their heads when the economy tanks? As it is, it's hard to afford food. It's hard to keep my mind from going right back to these overwhelming thoughts of worry. Maybe they already paid off their house, maybe their spouse makes a ton of money, maybe they have the ability to live on beans and rice without slowing down because of a bad diet... it must be nice to not need so much to manage your health and be able to focus on work.
- My eyes can't focus well. They go in and out of seeing everything through a blur. I don't think it's a vision problem because I am able to see clearly when I have energy.
- Why was my period 6 days late? I had to endure PMDD torture for 6 extra days. Why do I have to live like this? I had 2.5 weeks of PMDD which caused me to hate being in my own skin, and challenged me to get anything done. I can't live like this.
"I'd write a letter today"
Tell the world that you would hurt yourself
Can't look in a mirror much less anyone else
But you look like a ghost alive
You can't think always running in place
A lost soul that won't show his face
You're just someone who doesn't seem to know which way to turn
If you just ask for help, if you just ask for help
First thing I'll say is you gotta love yourself
Hard to take even the best of praise
A pair of hands that became too tough
A growing armor for whatever they might touch
You're just someone who doesn't seem to know which way to turn
If you just ask for help, if you just ask for help
First thing I'll say is you gotta love yourself
Yes, I would
If I could
I surely would, mmm hmm
Yes, I would
If I only could
I surely would, mmm hmm
Like a swan that's here and gone
A man gets tied up to the ground
He gives the world its saddest sound
Its saddest sound
Yes, I would
If I could
I surely would mmm, hmm
Yes, I would
If I only could
I surely would
And what I'm seeing in the world today is this attitude...
Tom Odell - money
Gotta make more, gotta make more money
Gotta make more, gotta make more
Gotta make more, gotta make more money
Thank the Lord for my Gucci and Dior
We're looking so great
We take, take, take
All we gotta do is
Take another picture of me
Take another hit and you'll see
That if you want it, you gotta get mean 'cause
We're just kids climbing up the trees
Just kids climbing up the trees
Thank the Lord, ain't no time for being poor
We're looking so great
We take, take, take
All we gotta do is
Gotta make more, gotta make more money
Gotta make more, gotta make more
Gotta make more, gotta make more money