Wednesday, March 13, 2019

Flu then Pnumonia then "Recovery"

First my husband came home with the flu and he was absolutley miserable. Then he had a week where he felt well enough, and I developed the flu. Then I started to feel slightly recovered and he developed Pneumonia. I had a week where I felt slightly ok, but had an extra painful endometresosis couple of days. Then a week later I got Pneumonia. X-rays and doctor confirmed Pnumonea. It looked like I had spider webs in my lungs. I was so incredibly sick, unable to lay down to sleep, that I willingly took the antibiotics. It turns out I'm allergic to amoxicillin, so then I had a few days of rashes and hives that left me in tears. I had to take antihistamines and lay in a baking soda bath for hours to feel even slightly comfortable again.

About 2 months of this is way more than I can handle. I'm still coughing up big wads of green from my lungs, and my ears often won't pop. Add to it severe negative windchills (as in we got below -40f several times), followed by a massive snow storm of 10 inches, and now tonight we're due for the next massive snow storm. We're in blizzard warnings right now.

I'm stuck inside of a house that I don't have the strength to clean, and I can't open the windows to air it out.

If I've been very grumpy, distant, selfish, unresponsive, or unsupportive... well I'm not sorry! I have not been well - no, I have not been ok!

My body is weak to begin with, so when put through the flu and Pneumonia back-to-back, you should not expect me to simply recover and get back to my life. My POTS has been strong, my fatigue intense, my sleep is a major chore... but more than anything, talking to people is the worst. I can't break out of my own head, and it's not even a choice - I simply can't listen. I'm trapped in a prison in my own head and everything you say bounces off those prison walls. I can't handle myself, so I cannot take you on.

I've pushed away my friends both online and in person. It got to the point where I almost felt like I resented them, almost hated them. I didn't want to talk, and I didn't want to listen. I hate that I ever felt that way, because I love my friends. But even now I still don't enjoy talking to them because I don't have the energy to engage. I don't even like TV shows because I don't want to listen to the character's problems. I can't take anything else on. I just need to recover myself.

I might need another few days. I might need a few more months. 


Getting sick on top of a chronic illness is very challenging. Pneumonia is no joke. People often get hospitalized from it. People die from it. I wish I was hospitalized. I really wish I had a machine attached to me to help me breathe, a port for regular IVs to keep me stable, a vacuum to go into my lungs and suck it out... at the very least, having trained medical professionals there to help at a moment's notice. That would seriously have been very helpful. But no. I suffered through it from bed without much help since my husband was so busy. I very inefficiently coughed way too much, slept way too little, sweated too much (I was up to 103f fever and the fever lasted just over a week), and ate poorly. Why? Because I was afraid of the cost of seeing a doctor, I didn't want to go on their drugs, I didn't have the energy to explain all my medical issues to them (that they still won't understand because they've never been trained on my issues), and I honestly felt like I didn't care of I died.

And now the most help I've had for my recovery has been acupuncture, but due to the weather I've only been able to go once. Acupuncture helped get more out of my lungs than anything else has, and gave me the strength I needed to rest properly. I'm going back for another appointment in a few hours - hopefully before the blizzard begins!

All I'm trying to say in this blog is that it's critically necessary to be patient with people who are sick on top of having chronic illnesses.

Thank you. 

No comments:

Post a Comment